Living with Traumatic Brain Injury

Concept regarding persistent vegetative state looks some what differ than we see it. During last four years which we saw it looks possible that they could recover but in the rooms and wards of hospitals no recovery is possible. A man who is total disable when ever he awake from his sleep and found him or her alone he or she can not go for betterment. I am sending you history of the patient and family but want to tell you that as far as my knowledge is we are at a wonderful stage and even without a visible command or control the patient is 100% wise and in mood to try and work but unfortunately we are without any knowledge and training to deal such patients. We can afford some expenses in this regard, but need support.

Jawad Pasha is now 26 year old. He was a beautiful smart 6 feet high young man,with a smile on his lips, dancing laughing and happy looking boy. He was studying at Comsat Islamabad for his BBA degree.. On 13th September 2004 his family was shocked by news that he is at military hospital Rawalpindi in very critical condition with some unknown accident. Doctors were having no hope of survival. It was a very severe head injury. Doctors told that survival is near to impossible and even when he was out of some danger doctors were in opinion that he could not improve. Pakistan is facing highest average of Trauma. Very less medical facilities and death toll in head injury is very high, survivors with brain injury have no place for them anywhere in Pakistan.

Same happened with Jawad Pasha. It is a sad story. He is perhaps in persistent vegetative state since then. Diagnoses in brain injury is often very difficult even for doctors. In case of Jawad Pasha for the years we presumed it locked in syndrome because there was no communication except some times by blinking eyes in yes, even up to now.

Later smiling and laughing was added so we could know he is happy. Now he is fond of listening, for hours you can speak with him. He us also happy with traveling. We are still unsure about his diagnoses and every time we consult a new doctor. He was under treatment since than at the 2 top hospitals and visited almost all famous hospitals here at Pakistan, brought him twice to Singapore SGH but only loss because they have no specialty regarding T B I.

But his family having other tragedies meanwhile. His younger brother Ubaid Pasha who was 23 was kidnapped for ransom on 5th March 2007, the same day on which he completed his computer degree and kidnappers received the ransom but they killed him and his body was found after arrest of the kidnappers and one of killers Roheel Asghar was the person who supplied medical equipment for Jawad Pasha. Ubaid Pasha was a Hope for the family and his elder disable brother. Meanwhile Land mafia power full here found these events fit to capture the family business .They torched threatened the family and beaten elder brother of Jawad Pasha and the old father is trying to save the business.

Jawad is now fully wise smiles and laughs when listen such talks, tries to move a little his hand or foot , identify and remember people and voices working hard since than without guidance. He is with good heath till now. There are visible signs of effort of the patient to regain his command on different body parts and a visible improvement. He still needs support in different fields such as Exercise machines for such patients, wheel chair of special description, Speech therapy guidance, Swallowing technology guidance, Bowl and Urine control guidance, Physiotherapy guidance because physiotherapist here are total unaware about such patients, etc.

Family is trying their level best and feel that they are going to see some improvements and it is going to be happen without any proper guidance, treatment or advise only by grace of god and support by family and friends of the patient my son Jawad Pasha and friends of their murdered son Ubaid Pasha: his 57 year old father,his mother already with kidney transplant, total hip replacement, Asthma and other problem and younger studying sister and other family members are working hard and committed to see him back on his feet are looking every where to have some support but still nothing practical.

Jawad Pasha is up to now looks hopeful, smiling even laughing sometimes, looking for brain injury and rehabilitation specialists all over the world to do something for him. This week younger sister of Ubaid Pasha passed B.A. in first class but the old father, sick mother, weak brother and total disable brother were weeping whole day. Killer bogus doctor Raheel Asghar is in jail but they are afraid that spending lot of money he will be out soon. Ubaid when alive took disable brother Jawad Pasha out to any place out of city every weekend now no one can do this.

Jawad Pasha is a wonderful patient now, still having no command or control on his body but otherwise fully aware with good health. We use 80% home food through feeding tube like soup, fresh fruit juices, boiled vegetables and some time boiled wheat blended with water and oats with milk. We try to move him as much as possible and some physiotherapy. One way communication since 4 years to see him smiling and sometime hear him laughing. Only a little Apival to control his fits otherwise no medicine normally given to him. Very much in need of a Physiotherapy specialist like one Dr Carina Eksteen of Pretoria who guided us when she came Pakistan to help earth quake victims.

Jawad Pasha is fully wise and trying to regain his muscular powers but still can not move. He is deserving to be a model for brain injury rehabilitation and new development. We know that there are thousands PVS patients in USA but this can even show that much spending USA is not well in improvement of these patients.