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Living with Seizures

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Little girl in distress!!!!!!
by: bb on Fri, Dec 26 2008
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Thought it was mental so we have been chasing the wrong boogy man. We now feel strongly that it is seizures we are on (Trileptal) 150 mg twice a day.

first week complete fix. Then morning she was depressed and frustrated and again at 7:00 pm. So permission from her doctor we up the dose. Seem to get worse then we now have gone back up on the dose. The seizure with the medication seems to last 1 hour. But its the worst hour of our lives. She on the groung screaming and its a rage her feet and hand she tightens them up due to the frustration levels that she has to endure.

The left side of her head has less feeling then the right. The eeg didnt show up anything. Im at a loss we have no where else to turn and she is totally normal when the seizure leaves. We get 10 hours of normal but the 2 hours a day make her feel is this worth it. She 11yrs old and I need to find the person to help us. we have been to metal hospitals and they dont have a clue the med of all combanation left her really in bad shape. We are better on the seizure meds. But not sure dignosis. All feed back is welcome.
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Comments
  1. Sat, Jan 10 2009
    I too have seizures. I am 30 yrs old and only developed a seizure disorder just over seven years ago. My neurologist is wonderful but the best expla...Read
  2. Mon, Dec 29 2008
    I feel how u r going threw with your child...Because i am a child too. I am 15 years old and have seizures too. I hope she feels better and hope that ...Read

December 2008

  • Little girl in distress!!!!!! - by bb - (Fri, Dec 26 2008)
    Thought it was mental so we have been chasing the wrong boogy man. We now feel strongly that it is seizures we are on (Trileptal) 150 mg twice a day. [more..]
  • when medication doesnt work - by shannon - (Tue, Dec 23 2008)
    I have had seizures for 5 yrs now and have been on 9 different medications to control them, which hasnt worked. [more..]

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