Living with Seizures

In 1971 I suffered a lefted sided Temporal AVM that bleed before being repaired at UCLA. I susequentenly had seizures among other residual side affects. At first, they were bothersome, but I rembered that one of the Doctors told me that a factor in my recovery would be my attitude. If I remained positive, my recovery would be good.

So, I just made my mind up to it that I would be able to do what ever I wanted to do, and try. So, first, I promised to take my medication, Phenobarbital, as told, and not skip. (I had been “cheating” and having seizures, because I did not like being drugged). So, I eventually got used to the drug and went on with my life. I raised my two daughters, traveled, owned my own business, pretty much did what most others do. When ever I have a problem with my seizures my meds would be increased and I would take them as I promised and things went along. Time passed and 37 years have passed.

Early this year, I began to have incrased activity in seizues with no apparent cause. I am now 60 years old and thinking I was going to have another stroke was quite scared. My meds had quit working, so now the challange of changing to a new medication. I wish I could remember the name of that Doctor who told me to maintain a good positive attitude, because I would give him a call and thank him.

Now I need to change. Now I need to reflect on all the positive things that have helped me enjoy my life to this point. As I feel the changes coursing through my brain and into my body now, how will I use what I have gained through the years to push me ahead now? Although I see light points and light trails at times, I still have wonderful memories to pull me through them, the laughter of two daughters playing, the laughter of girl friends at movies and card parties, BBQ’s..yes, so much life I have enjoyed. And, if by chance you happen to be reading this little note and you are young, remember, you too will live life and are making memories to help you thru what ever changes you may have to make in future.