Living with RSDThis section is a place to share stories about Living with RSD Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Lucky/early diagnosis May 31,2009 I broke my ankle. The pain was immediate but the diagnosis was slow coming. My Physical Therapist on my firs visit, identified the RSD he understood the urgent need for early neurological assistance. He saved my life! From my ankle up to my knee the skin was shiny and hyper sensitive. I could no wear long pants, socks, I could not even wear the boot/cast, I was supposed to wear. I was not sleeping because I could not lay my leg on the bed. I was LUCKY, my Surgeon accepted the notion that I had RSD He took me off the pain narcotics and put me on Gabapentin. His only comment was, “I sure hope you don’t have that!” I needed to find a nerurologist, ASAP. First available appt was 3 months out,here again I was LUCKY, the lady on the phone went to the head of neurology, (crying really helps) and convinced them we needed to treat this NOW. It was 6 weeks after my injury when I had my first visit with 2 neurologists. They contined the Gabapentin and added Clonazepan at night, and an ointment to apply to the outside of my ankle 4 times a day. Continued physical therepy. I read eveything I could on RSD, and realized I was in deep doo doo. As soon as I could drive, I found a gym near my house with a warm water pool, so I could exercize my ankle injury. I read that execize was a big part of the healing. Today, 4 months later, I still have the RSD pain in my ankle but it is mostly contained to he scar area. I still go to PT once a week. The cold fall air is a new problem. I can now wear knee socks and long pants for a week now. The topical ointment I apply 2 times a day. I no longer need the clonazepan at night. I take 300mg of Gabapentin at night. 100 mg twice a day. These drugs make me dizzy, and very tired. Depression is an issue, too sometimes, but the pain is “under control” SO FAR… I have osteo arthritis and all the stress on my knees is a real bother. I am not able to return to work yet, but I am Lucky, I don’t have to. My RSD journey is not over, but I am not suffering as much as I was in he first month after my ankle surgery. My best advise to anyone, he moment you hear the possibilty pursue neurological help with a vengence. Don’t wait. Not everyone has to suffer with RSD! Comments
October 2009
|
|
Archives:
The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer) |

