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Living in fear
by: Brit on Thu, Oct 01 2009
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My name is Brit and I’ve been diagnosed with RSD for over a year and a half. I went to Dr. Sherry’s program in Phily. It really helped, but I still get attacks and it recently just spread from my arm and back to my leg.

Most of the time I feel halfway normal, no pain just weak. When I get a flare up I feel like I’m being burned alive and no one will or can help me. The worst part is my family won’t stand by me til’ its gone, they just leave. I’ve lost my friends, my high school, and now because of the recent spread I had to move back home and drop out of college. I hate this, but I like to think that god doesn’t give me anything he doesn’t think I can’t handle, at least I’ve heard that expression I just need to believe in it.

Every night I go to bed fearing that when I wake up in the morning I won’t be able to use my arms or legs or even move my entire body ever again. Then I wake up and for a second I’m grateful beyond belief that today wasn’t that day. Then reality sets in, I want to believe that it won’t become perminant, but I fear anyways, always, and forever. I’m living in fear and it’s wearing me down.


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Comments
  1. Tue, Oct 06 2009
    Hi Britt, Sorry to hear of your RSD condition. I too have RSD resulting from an accident back in 2007. I've been taking neurotin for the pain but the ...Read
  2. Fri, Oct 02 2009
    Hi Brit I'm so sorry you have RSD! What test did they do to know for sure you have it. I just had foot surgery and I may have RSD now. My family Dr. ...Read

October 2009

  • Shanna’s Days - by Shanna - (Thu, Oct 29 2009)
    It is so hard to remember that there was a time when my life was normal? 3 years ago I had to have back surgery I had exhausted all other alternatives.The surgery went well& I was released 24 hrs later only to be rushed to the hospital 5 days later with an impacted bowel. [more..]
  • Lucky/early diagnosis - by Lori - (Wed, Oct 21 2009)
    May 31,2009 I broke my ankle. The pain was immediate but the diagnosis was slow coming. My Physical Therapist on my firs visit, identified the RSD, he understood the urgent need for early neurological assistance. He saved my life! From my ankle up to my knee the skin was shiny and hyper sensitive. I could no wear long pants, socks, I could not even wear the boot/cast, I was supposed to wear. I was not sleeping because I could not lay my leg on the bed. [more..]
  • they think its RSD - by JG - (Fri, Oct 16 2009)
    A year ago when I went to walk I had pain on the outer edge of my ankle but after “walking it out” it would go away. In June it started throbbing and not going away. I went to the hospital and they put my ankle in a brace and told me to ice it. [more..]
  • New at this-RSD - by Carmen - (Tue, Oct 13 2009)
    I broke my heel in May 09. I never seemed to be making much progress. I had (still have ) numbness on the left side of the left foot. [more..]
  • why - by dayle - (Fri, Oct 09 2009)
    my name is dayle-always a very active on the go person. nothing could stop me. even being sick, surgeries, etc. in my life….couldn’t keep me down. until one day totally changed my entire life. i was told i had RSD type II…severe nerve injury, [more..]
  • CPRS Type II - by Anthony - (Thu, Oct 08 2009)
    I was injured on thr job in 1986 using a weedeater. I had carpal tunnel release in 87 and had burning pain for 3 years. [more..]
  • RSD or Chronic Regionial Pain Snydrome - by Beverly (BEV) - (Wed, Oct 07 2009)
    I am a 43 yrs old female and 7 months ago, I was injured while driving a School bus with kids aboard, when a Deer Ran out in front of my Bus Causing my left arm (elbow) to hit the Heating Panel I have lost all 3 of my jobs [more..]
  • RSD - by Linda - (Mon, Oct 05 2009)
    I had a fracture on the side of my foot, wore a boot cast walker and almost immediately experienced more pain. My doctor put a hard cast on my foot/leg for 6 weeks, but the pain only increased. He took off the cast, my foot up to my knee was red, swollen and very shiny, and oh so painful, couldn’t even touch it. [more..]
  • SADIE’S SUFFERING - by Laura - (Mon, Oct 05 2009)
    My daughter was just diagnosed with RSD. She is only 10 years old. I’m having a difficult time trying to help her with her pain. She goes to a school that does not have an elevator and only has stairs. Her classroom is [more..]
  • dont know for sure ???? - by penney - (Fri, Oct 02 2009)
    Hi my name is Penney I had foot surgery on Aug. 10th. My foot stayed swelled, I had burning pain in my big toe and 2nd toe, also felt like needles were being stuck through the top of my toes, I assumed it was because of nerves being messed with during the surgery, I wear a [more..]
  • Living in fear - by Brit - (Thu, Oct 01 2009)
    My name is Brit and I’ve been diagnosed with RSD for over a year and a half. I went to Dr. Sherry’s program in Phily. It really helped, but I still get attacks and it recently just spread from my arm and back to my leg. [more..]
  • rsd/cprs type II - by Dawn from Michigan - (Thu, Oct 01 2009)
    1997 was injured at work. 2000 I had to have surgery on my right arm, medial epicondilis ulnar nerve transplant. Took 6 months before I returned to work, unfortunately my employer would not [more..]

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