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This section is a place to share stories about Living with RSD
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In the beginning
by: Pamela E
on Mon, Jul 13 2009
I was just recently diagnosed with RSD which has come as a result of a freak accident making biscuits. I was using a wine glass, turned upside down, to make the circles. The dough was thick and I pushed hard. The stem of the glass snapped and went through my hand. The ER put super glue and steri strips and sent me home with plenty of pain killers.
At first things seemed to be getting better as I struggled to do the painful physical therapy and was told repeatedly that “It could hurt me, but I couldn’t hurt it.” In other words, push, push, push. Then I went into such extreme pain an alarm went off and they called a halt to get my nerves to calm down. That was when this diagnosis began to develop.
Last week, going on 10 weeks since the accident, a nuclear scan confirms that my right hand is full of activity definitive of a RSD diagnosis.
I have been taking Prednisone and the swelling is much decreased. I am almost finished with a 14 day course. I am on pain killers,doing gentler therapy, realizing they don’t know a lot about this condition. I have decided not to use ice, have surgery, or do contrast baths. Even this typing needs to end right now so I don’t feel guilty that I am over stressing my hand.
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July 2009
- I’m Lost … Both legs - by Jackie - (Tue, Jul 28 2009)
Over two years ago I was playing in a lacrosse game. It was a really cold day and I wasn’t wearing any protection on my legs. As a result I got a severe muscle cramp in my left calf which caused me to collapse and be removed from the game. I was told I had a muscle strain and in a few weeks I would be back to normal.
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- your stories have been a help - by BRYAN - (Tue, Jul 28 2009)
My name is Bryan i was diagnosed with RSD type 2 in march 2009 from a hernia surgery I had in 1998.
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- don’t give up - by Linda - (Tue, Jul 28 2009)
I had surgery on both feet two years ago and developed RSD in both feet following the surgery. I was diagnosed 3 months following the surgery and immediately started treatment.
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- worst foot injury ever! - by BD - (Fri, Jul 17 2009)
hello all. i had a freak accident just over a year ago in july 2008 when i dropped roughly 2500 lbs on top of my left foot, while attempting to hook up my BRAND NEW boat/trailer up to my truck. Every pound of that weight smashed the top of my left foot, resulting in bone, muscle and tissue damage but no broken bones.
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- FROSTBITE LEFT FOOT - by CHRISTY - (Fri, Jul 17 2009)
I started a job working in a freezer as a food order selector, I only worked there for one month I got frostbite on my left two great toes, it was as bad as a third degree burn.
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- My RSD - by HOLLY - (Fri, Jul 17 2009)
On July 22, 2006, I was struck and run over in the parking lot of a golf course. An acquaintance of mine drove a speeding cart uncontrollably through the rocky lot, finally crashing into me, hitting my lower back and throwing me into the air like a rag doll.
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- left little finger - by anna - (Fri, Jul 17 2009)
I was showing a girl how to do my job when she hit the button and rewelded the part along with my little left finger.It was in may of 2006,I ended up with a third degree burn and a 3and a 1/2inch scar on my uper left arm
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- RSD - by SH - (Wed, Jul 15 2009)
On February 13, 2009 my mother was getting groceries out of her trunk and slipped and fell twisting her ankle as she fell down. We thought that maybe it was just a sprain until we went to the doctors office and they did xrays and found out that she had a fracture on her small toe bone. She had a hard time getting around and fell again and started feeling the burning sensation on her foot. She went to the doctor several different times and finally after her foot was so red he diagnosed her with RSD.
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- RSD Hardships - by DF - (Tue, Jul 14 2009)
I first broke my ankle in the Army, I did almost 4 years of active duty with the Doctors probing, re-breaking etc. Then I entered the VA System. I had three surgerys through the VA, and finally after 20 years was diagnoised with RSD.
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- In the beginning - by Pamela E - (Mon, Jul 13 2009)
I was just recently diagnosed with RSD which has come as a result of a freak accident making biscuits. I was using a wine glass, turned upside down, to make the circles.
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- Living in fear! - by Anita - (Tue, Jul 07 2009)
hi i,m Anita 39 yrs and i,m having a lot of pain and my doctor is doing every thing he can to help me. I have Reflex Sympathetic Dystrophy and whats weird is i had a ultra sound on my leg the doctor said they are looking for blood clots and they found nothing.
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- Living in Doubt - by Kate - (Mon, Jul 06 2009)
one year ago, as I was playing soccer with my friends, I sprained my ankle. I thought nothing of it, until my entire leg felt as if it were on fire. I went to the E.R. where my Dad works, and had an x-ray. it showed absolutely nothing. the pain worsened, and so did my fear. the doctors grew worried, and scheduled me for a nuclear scan. The scan showed rapidly decreasing muscle
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- my dad has rsd - by aj - (Mon, Jul 06 2009)
in august 2006 my dad took a fall at work suffered nerved damage in one hand and broke a small bone in his hand near his thumb. he was diagnosed for rsd after 2 second opinions from other doctors cause
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- Reflex sympathetic dystrophy (RSD), also called complex regional pain syndrome (CRPS) - by soaringeagle - (Wed, Jul 01 2009)
I have Reflex sympathetic dystrophy (RSD), also called complex regional pain syndrome (CRPS), in my right foot.It is going on 7yrs now I had it.Have pain all the time needle feeling , like foot fell asleep and a electric shock feeling.It gets bad at times like you touched an electric fence
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- new procedure - by maryanne - (Wed, Jul 01 2009)
Hello,
Like all of u , I have rsd. I too have try nerve blocks without success but I’m going to try a new procedure.
The new procedure is with clodronate
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