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This section is a place to share stories about Living with RSD
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CRPS in and out of remission
by: Carolyn
on Tue, May 05 2009
Hi my name is Carolyn and I am 45 years old. My story actually begins back in 2004. I work as a youth crisis counsellor in a high risk security unit of a psychiatric hospital. I was attacked and assaulted by a patient there which resulted in injuries to the entire left side of my body. Nothing was broken just badly bruised and traumatized. I was off work for roughly 3 weeks after this at which time I felt able to return to work. 6 months later the pain starts. It intensifies to include my entire left side but the inflamation was primarily the left arm, shoulder and neck. It had all the same symptoms as CRPS/RSD. THe feeling as if I had a sunburn, jolts of what felt like electricity, constant muscle aches, sensitivity to touch, temp noise. Pain that actually moved my limbs for me, kind of like spasms.
The doctors did all sorts of tests but nobody thought of CRPS at that time. After 7 months the symptoms had dissapeared and I resumed my life never having known what had just happened to me. 4 years later 2008, my right knee becomes swollen and painful out of the blue. No injury this time. The leg changes colour to a dusky purply and remains swollen and painful everyday and night. The pain intensifies and I become physically limited. The doctor does bloodwork and identifies that I am positive for two antibodies ANA and ENA which may indicate an autoimmune or connective tissue disease. Months later, still in pain and 3 doctors later I go to see a sceroderma specialist and he examines me. He studies all my test results and diagnoses me with CRPS. My symptoms of my right leg, hip and foot start to mirror image on the left leg. The intense burning pain is beginning to abate but I can feel all the other symptoms lurking there. I can no longer bend three of the toes on my right foot and constantly feel tingling, hot and cold and pain in my feet.
I wonder if anyone else has gone into remission spontaneously without medication. I am allergic to a lot of pain meds so I do not take any. Although, some days I wish I did. I have not been back to work for the past five months and am not sure what to expect yet. This is all so new but now that I have a diagnosis everything from all thoses years fits right in. I would really appreciate anyone’s thoughts on remission and possibilities for the future. Thanks, Carolyn
Comment on this
Comments
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Wed, May 06 2009
Thank you for your support and experience. I am sorry that you are back in that awful never ending pain. Keep up the hope that this flare up will be s...Read
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Wed, May 06 2009
Hi, I have not yet been diagnosed, however like you, I have all the symptoms and am just waiting for some doctor to figure it all out and diagnose me ...Read
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Wed, May 06 2009
hey carolyn. my name is david and i am 21 years old. in january 2009 i was in an almost fatal car crash that put me in ICU for a week and in another r...Read
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Tue, May 05 2009
Hi,
My name is Darlene and I am 51 years old. I had to respond to your post, as I have been bothered with RSD for close to 20 years. About 20 year...Read
May 2009
- RSD - by Rosemary - (Fri, May 29 2009)
Hello ,My daughter who is 8 broke her left leg 1/18/2009 . We had it in a cast for 3 weeks the doctor came back and told us it was never broken just sprained really bad.
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- Living With RSD - by Jane - (Wed, May 27 2009)
I am a nurse who had back surgery in 5/2005 for L3,4,5,S1 with stenosis removal and fusion.
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- Pain Beyond Belief…They Have a Name For “it”…RSD - by LJM - (Wed, May 27 2009)
I have been a business professional for over 25 yrs. My high profile job kept me busy a minimum of 12 - 14 hrs a day. And, I thrived on the challenge - looking for more ways to improve my professional image.
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- ITS CHANGED EVERYTHING - by Syble - (Wed, May 27 2009)
ON the morning of feb.2007 I fell in my kitchen floor and i heard a noise i had never heard it was my left leg breaking my foot was setting backwards Icalled my husband after crawling to my phone who called an ambulance.I had broken my tibia my fibia and dislocated and broken my ankle
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- RSD - by Val - (Tue, May 26 2009)
WOW! I am shocked to read about all of the suffering with RSD
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- Living with RSD - by FRN - (Tue, May 26 2009)
On Jan. 08 I had Patella reconstruction on my left knee, everything seen to be fine after, about a month or two later, I have noticed that my knee look darker than normal and very sensitive to the touch.
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- Foot Pain With Shoes ON - by David - (Thu, May 21 2009)
Seeing if anyone heard of this type of pain. When I put a shoe on my right foot it is instant pain and burns.
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- Left ankle - by Red - (Thu, May 21 2009)
Hi, im a 55 yr.old male who drives a truck in the const. industry. On May 14,2007 i twisted my left ankle and broke my tibia bone. i have had CPRS ever since.
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- RSD….. - by Hazel J. - (Wed, May 20 2009)
This RSD….is not easy to navigate.I am deeply sadden that the medical cummuinty only has pain killer’s to help me.
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- after ankle fusion rsd - by mr. fitch - (Tue, May 19 2009)
in 1978 a horse flipped over backwards and landed on top of me. i had my lower 3 vertebras fused. in 1994 i arrested a drunk driver and ended up hurting my back again. i have pain mostly on the left side of my body.
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- Ignorance is not Bliss - by M. O'D - (Tue, May 19 2009)
I was involved in a car accident in which a small bone in my hand was broken. Surgery could not be done for 10 days, so my hand was put in a half plaster cast and repaired with the insertion of a screw and pin. Within a couple of days my hand began to burn and drive me mad under the cast.
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- R S D - by CC - (Tue, May 19 2009)
I am Cindi, I am 50 years old I rsd may I say to anyone who has this I feel bad for myself and you,, r s d is missed by several dr.
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- Living with RSD - by Karen - (Mon, May 18 2009)
I’m glad I found other people that feel the same way that I do. I had an injury to my knee on 8/28/08 and had surgery finally on 2/23/09. I went to have my stitches taken out and oh wow I thought I was going to die. After the stiches were removed the barely touched my knee and the pain sent me right threw the roof.
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- living with pain - by loryn - (Mon, May 18 2009)
since i was ten i have lived with the pain of rsd in my right ankle
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- RSD After Hand Surgery - by Joan - (Mon, May 18 2009)
February 2009 I had hand surgery to release Dupuytrens Contractor. I woke from the surgery and had two fingers (ring and middle) that were hot and prickly and no feeling.
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- RSD my Monster - by Adina - (Mon, May 11 2009)
Since I was a young child I have always know pain, from mild to severe. My parents tried everything to get an answer but always hit walls.
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- Adiela F - by Adiela - (Tue, May 05 2009)
Living with RSD
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- CRPS in and out of remission - by Carolyn - (Tue, May 05 2009)
Hi my name is Carolyn and I am 45 years old. My story actually begins back in 2004.
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- 10 years now its moving - by Tracy - (Fri, May 01 2009)
Hi Everyone, I am a male.with the name Tracy. Thats been the first difficulty in my life. Nothing though compared to the RSD I have.
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- i woke up withrsd immediatly after surgery - by cynthia - (Fri, May 01 2009)
I am so glad to find this site, I have had rsd since Jan 5th, I had a laminectomy of the posterior and anterior lumbar as soon as anesthesia wore off I was in immidiate burning pain
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