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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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10 years now its moving
by: Tracy
on Fri, May 01 2009
Hi Everyone, I am a male.with the name Tracy. Thats been the first difficulty in my life. Nothing though compared to the RSD I have. It started with a severe laceration to my left thumb when I was 19. Then I had neuromas, (cysts), accumulate on the ends of my nerves in the thumb causing hyper sensitivity this inturn started my problem. After the neuromas I had a spinal chord stim put in to try to block the pain. Well it didnt work. Instead the RSD moved to my back which is according to my Dr is unusual to get it there. However all my symptoms point to RSD
Now I have slipped and fallen at work. And all signs point to it in my right arm. Not Good. the hardest thing about this besides the pain is people looking at you like your making it up. It starts to make you think your crazy and second guess yourself. I know this because I have gone off my meds more than once thinking it is in my head only to find that I stay in bed for a week or so because I cant move without pain. Unfortunatley the pain while in bed is almost as bad as moving. Then there’s the sweats the tremors the pain of sheets touching you or loved ones trying to touch you and you cringe at the thought, the swelling and the list goes on. All this that I have lived with for 15 years. I still have’nt let it hold me down I do work and everyday getting up for the past 15 years has been like an 80 year old man moving around the problem is that it is getting worse instead of better the pain is getting to a point that I cant block it out.
My meds have increased and so has the pain i think it is finally gonna win. It’s pretty bad to see a 40 year old man sit and cry because he knows what’s ahead. The people staring from the outside dont even realize what you’ve it has been like in the past. I guess what bothers me the most is the fact that i am headed for worse days instead of better. All I can say to everyone who has this disease is: Always push yourself to do whatever you want because the Prize at the end will far outway the Pain it takes to get there. Then you can say. I DID IT.
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Comments
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Thu, May 21 2009
Hi Tracy
I have to say, you've got some great humor--I guess you have to with a name that probably is often confused with a female.
After reading y...Read
May 2009
- RSD - by Rosemary - (Fri, May 29 2009)
Hello ,My daughter who is 8 broke her left leg 1/18/2009 . We had it in a cast for 3 weeks the doctor came back and told us it was never broken just sprained really bad.
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- Living With RSD - by Jane - (Wed, May 27 2009)
I am a nurse who had back surgery in 5/2005 for L3,4,5,S1 with stenosis removal and fusion.
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- Pain Beyond Belief…They Have a Name For “it”…RSD - by LJM - (Wed, May 27 2009)
I have been a business professional for over 25 yrs. My high profile job kept me busy a minimum of 12 - 14 hrs a day. And, I thrived on the challenge - looking for more ways to improve my professional image.
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- ITS CHANGED EVERYTHING - by Syble - (Wed, May 27 2009)
ON the morning of feb.2007 I fell in my kitchen floor and i heard a noise i had never heard it was my left leg breaking my foot was setting backwards Icalled my husband after crawling to my phone who called an ambulance.I had broken my tibia my fibia and dislocated and broken my ankle
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- RSD - by Val - (Tue, May 26 2009)
WOW! I am shocked to read about all of the suffering with RSD.
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- Living with RSD - by FRN - (Tue, May 26 2009)
On Jan. 08 I had Patella reconstruction on my left knee, everything seen to be fine after, about a month or two later, I have noticed that my knee look darker than normal and very sensitive to the touch.
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- Foot Pain With Shoes ON - by David - (Thu, May 21 2009)
Seeing if anyone heard of this type of pain. When I put a shoe on my right foot it is instant pain and burns.
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- Left ankle - by Red - (Thu, May 21 2009)
Hi, im a 55 yr.old male who drives a truck in the const. industry. On May 14,2007 i twisted my left ankle and broke my tibia bone. i have had CPRS ever since.
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- RSD….. - by Hazel J. - (Wed, May 20 2009)
This RSD….is not easy to navigate.I am deeply sadden that the medical cummuinty only has pain killer’s to help me.
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- after ankle fusion rsd - by mr. fitch - (Tue, May 19 2009)
in 1978 a horse flipped over backwards and landed on top of me. i had my lower 3 vertebras fused. in 1994 i arrested a drunk driver and ended up hurting my back again. i have pain mostly on the left side of my body.
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- Ignorance is not Bliss - by M. O'D - (Tue, May 19 2009)
I was involved in a car accident in which a small bone in my hand was broken. Surgery could not be done for 10 days, so my hand was put in a half plaster cast and repaired with the insertion of a screw and pin. Within a couple of days my hand began to burn and drive me mad under the cast.
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- R S D - by CC - (Tue, May 19 2009)
I am Cindi, I am 50 years old I rsd may I say to anyone who has this I feel bad for myself and you,, r s d is missed by several dr.
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- Living with RSD - by Karen - (Mon, May 18 2009)
I’m glad I found other people that feel the same way that I do. I had an injury to my knee on 8/28/08 and had surgery finally on 2/23/09. I went to have my stitches taken out and oh wow I thought I was going to die. After the stiches were removed the barely touched my knee and the pain sent me right threw the roof.
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- living with pain - by loryn - (Mon, May 18 2009)
since i was ten i have lived with the pain of rsd in my right ankle
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- RSD After Hand Surgery - by Joan - (Mon, May 18 2009)
February 2009 I had hand surgery to release Dupuytrens Contractor. I woke from the surgery and had two fingers (ring and middle) that were hot and prickly and no feeling.
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- RSD my Monster - by Adina - (Mon, May 11 2009)
Since I was a young child I have always know pain, from mild to severe. My parents tried everything to get an answer but always hit walls.
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- Adiela F - by Adiela - (Tue, May 05 2009)
Living with RSD
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- CRPS in and out of remission - by Carolyn - (Tue, May 05 2009)
Hi my name is Carolyn and I am 45 years old. My story actually begins back in 2004.
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- 10 years now its moving - by Tracy - (Fri, May 01 2009)
Hi Everyone, I am a male.with the name Tracy. Thats been the first difficulty in my life. Nothing though compared to the RSD I have.
[more..]
- i woke up withrsd immediatly after surgery - by cynthia - (Fri, May 01 2009)
I am so glad to find this site, I have had rsd since Jan 5th, I had a laminectomy of the posterior and anterior lumbar as soon as anesthesia wore off I was in immidiate burning pain
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