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This section is a place to share stories about Living with RSD
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12 years of living with awful pain - RSD
by: Sandi S.
on Wed, Mar 04 2009
It was a normal day like any other day. I was canning tomatoes and ran out of lids and got in the car to go to the grocery store just 5 blocks away and while sitting at the stop light with the grocery store the very next turn I was hit in the back - hard - by a drunk driver. Five operations later and a year and 1/2 later I find out I have RSD because of the injury to spinal column.
It has effected my entire life. I was wheelchair bound the first 3 years only and then slowly have gotten to where my Doctor has found the right medications to make it so I can at least walk on crutches for awhile and stand to be on my legs. I have RSD in both feet, both legs, up my back and in my neck. I could not have even imagined living with this kind of pain before having RSD but somehow you get the strength to go on and make it just one more painful day. I now am use to being awake every 2 hours all night long from the pain and having to hardly go anywhere - especially in the winter. What I can not get use to is how people react to me because I have RSD
My husband left me the first year because he said he did not sign up to live with a handicap. My friends have dwindled away because I can not do very much. I can not work anymore and I loved my job. I miss half of the family gatherings and barely could go to my mothers funeral. I get shingles now and my immune system is shot and get about everything that I get in contact with. Going to the grocery store alone is horrible and a very painful job. Then I have the groceries to carry in the house alone. Life is so hard with RSD and people do not realize what a lonely disease this is.
More than the pain the loneliness is horrible. People feel helpless and it get’s hard for them to see you in pain - they say. It is hard to be in this kind of pain - but loneliness and the pain together is awful. I can not sit at church as long as most services go and I miss that. I am hoping by writing this I can meet others with RSD and start to visit with them. I understand what you are going through and you do me. It is a hard life but I must get through each day and want to - I just want to be able to talk and visit with people still. I do not want to be alone so much in the pain. Is there anyone out there that feels like I do? My heart goes out to all that have RSD because it is a horrible disease to live with. I hope for all of you a pain free day and happiness in the future.
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March 2009
- Still Wondering - by Toni-Lynn - (Mon, Mar 30 2009)
Hi, I am Toni, a 28 year old female. I have been going back and forth to several doctors about my condition and no one has any answers for me. I wanted to share with the users of this site my symptoms because after researching RSD I really feel this is what I am suffering with.
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- NOT DIAGNOSD YET - by ROBIN - (Mon, Mar 30 2009)
I haven’t been diagnosed with rsd yet, but I am pretty sure that is what I have.
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- My New Life with RSD - by Dana - (Thu, Mar 26 2009)
I became a widow at 48 and I have 3 sons 2 are autistic.
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- Living with RSD - by TAK - (Wed, Mar 25 2009)
I have had RSD for the past 15 years.
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- melisA - by MA - (Wed, Mar 25 2009)
I have been mis diagnosed now for over a year and the finally have said that I RSD.
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- The Evil Disease - by Clara - (Wed, Mar 25 2009)
My name is, Clara White, I have had RSD since 2006. I have done the nerve blocks until they no longer help, now my pain management Dr. wants me to have a spinal cord stimulator implant.
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- RSD - by Lou Anne - (Wed, Mar 25 2009)
I feel as though I have found a pot of gold at the end of a rainbow.
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- Spreading RSD - by Robin - (Tue, Mar 24 2009)
Does it ever stop! I am a nurse and was working in a nursing home and of course short staffed. I was helping with rounds at night and lifted a patient back into a wheelchair to prevent a fall. I felt a pain in my shoulder and after three surgeries later developed RSD that took over my right arm.
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- Hello I have total rsd - by Debbie - (Thu, Mar 19 2009)
I have went through 29 doctors before i was blssed with a rsd doctor.
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- Having babies while having RSD - by Marlador - (Thu, Mar 19 2009)
I had not been dianosed with RSD at the time but finding out later that I have had it.
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- A MINOR SURGERY - by wendy - (Thu, Mar 19 2009)
I had alot of discomfort in my right foot,it felt like i had a rock in my foot.I went to a foot doctor and to make a long story short he said i had a small tumor in between my toes.I had the surgery and found out by his own words that he misdiagnosed.
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- RSD has overturned my life - by angelicrose - (Wed, Mar 11 2009)
Hello I’m Angelicrose. I’m going to be 32 on Fri. I was disabled 2 1/2 years ago from a work injury. I had slipped on water. Comp had told me it was a simple sprain! I had gotten so bad that I couldn’t walk.
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- These Seven Years - by Lee-Lee - (Tue, Mar 10 2009)
Hey. I’m just like you- trying to make the best of these hard times, and trying to have a good life- Except that I have RSD.
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- Yes, RSD can be fatal - by Mary Jane - (Tue, Mar 10 2009)
My husband suffered from RSD/CRPS for 8 yrs.
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- rsd - by sr - (Mon, Mar 09 2009)
i have had rsd over 10 yrs many people don’t understand the pain that comes with this disorder.
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- freezing legs - by L. W. - (Fri, Mar 06 2009)
I had surgery 2 yrs. Ago. Vein surgery the kind with the new laser technique.
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- Living with facial RSD - by DB - (Fri, Mar 06 2009)
I too have facial RSD. My came about after nose surgery. I broke my nose in two places and required surgery. After surgery, my forehead was extremely swollen and I could not move my right eyebrow. I was in excruciating pain for years.
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- My daughter has RSD - by Drew Anne's Mom - (Thu, Mar 05 2009)
Hi, my daughter has RSD.
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- 12 years of living with awful pain - RSD - by Sandi S. - (Wed, Mar 04 2009)
It was a normal day like any other day. I was canning tomatoes and ran out of lids and got in the car to go to the grocery store just 5 blocks away and while sitting at the stop light with the grocery store the very next turn I was hit in the back - hard - by a drunk driver.
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- Diagnosed with RSD - by Leona W. - (Wed, Mar 04 2009)
I wrote before( Do I have RSD?) but forgot my user name and cannot get back on.I was diagnosed with RSD today, had a Bone Scan. Now the pain and stiffness is going up into my arm!
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- My Walk Through Icy Hell - by Misty - (Tue, Mar 03 2009)
March 2006… That is when my life changed … slowly turning into my own Icy Hell!
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- springdaisy - by kelly - (Mon, Mar 02 2009)
I was diagnosised with rsd one year ago some days seem good then the burning pain starts and I have days of misery.
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- Not myself anymore - by Ss - (Mon, Mar 02 2009)
I stumbled across this site while researching this “condition” that I have. As was stated in a previous posting, not really a group that anyone WANTS to belong to but you all sound so nice!
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