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This section is a place to share stories about Living with RSD
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Living with RSD 20 Plus years
by: diane
on Tue, Jan 06 2009
After reading a few of these stories, I knew I needed to write, I too have RSD over 20 years, My right arm, And now my upper body has been taken over, I type with two fingers. The pain stays at about a 7 in the morning and climbs to 8 to 10 by day’s end. RSD is part of me, no choice. So, How do you deal with pain 24/7 that can and has made you depressed. Take your life back, Crying will not help you, Suck it up, Own it. It’s yours, RSD will not just magically stop one day, it will eat you alive, If you allow it to.
Look it’s not easy, No one should live in pain, Yet here we are. So what do you do? I can tell you what works for me. Who knows, I might be the answer to your prayers. Facing everyday with RSD It stole my life, Robbed me of a life that I dreamed of, And was on my way to, Then one day bang, everything changed. And yet here I sit. Over, Twenty years later, Worse pain ever in the past 6 months.
Here’s what I need you to do. First, I want you to get a really funny movie and laugh, Sing, Very Loud, Who cares if you stink at it, Sing your heart out, Buy yourself something that makes you smile, Get a hobby, Get 3 or 4 hobbies, Stay away from people that will depress you, Hang around with happy folks, Were in pain not dead, Who says we can’t laugh because we are in pain. Stay positive.
I give myself 15 minutes a month to cry and feel sorry for myself, With no carry over minutes, That’s it. I know it’s hard, Trust me, Over 20 years with RSD, with no hope of getting better I know. Now focus on what you can do, Not what you can’t. This is my chant, I am better than the pain, I am in control of my pain, The pain doesn’t control me. Breathe in through your nose hold it for 4 seconds, Breathe out through your mouth. Do this when you need to, I find myself doing this a lot. Learn boi-feed back, It helps. Ask your doctor about it. The most important thing to know is, keep positive, This is a job in itself, Being in pain is hard work, We need to learn how to live all over again. Giving up the things we all took for granted.
RSD robbed us, So now we learn how to find a new way to live, When I think back over the past 20 years, I understand the why this happened to me. We only need to look. Being new to RSD, Is the hardest, Understanding it, accepting it, takes time. I will add more to this in a few days. Need to rest. Hope this helps someone. Diane
Comment on this
Comments
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Mon, Jan 26 2009
Hello Amy, Bless your heart, You are a wonderful wife finding out info on rsd, what better way to learn then to speak or in this case write to others ...Read
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Mon, Jan 26 2009
Hey Sammy, Thank you so much for your kind words, You as well have a wonderful outlook, I found this web site and began to read the stories here, I wa...Read
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Mon, Jan 26 2009
I am a wife of a RSD sufferer. He developed RSD in 2001 after getting Carpel Tunnel Release in his right hand. Now it is up his arm and has to wear a ...Read
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Mon, Jan 26 2009
Good morning Allyson, I am so sorry, I also feel that same pains, only not the back pain as you described. I dont get the numbness very often, Howev...Read
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Mon, Jan 26 2009
Hi Dustdoo1,
I read your story, an I just wanted to reply to you, as you have a very Great outlook..I Must say. Your Quote Touched me, as you seem to ...Read
January 2009
- RSD - by Ursula - (Wed, Jan 28 2009)
In 1996 I was diagnosed with RSD and I realised almost immediately that Doctors do not understand RSD but what became phenomenal is how RSD affected my eyes and consequently my vision which eventually became internal vision of unbelievable magnitude.
[more..]
- the car that struck and drove away - by Laurie - (Mon, Jan 26 2009)
Three years ago I was a manager of a local gas station I was doing some work around a gas pump and turned and was struck by a car cutting thru the parking lot to avoid a red light.
[more..]
- just dealing - by francomom3 - (Fri, Jan 23 2009)
Well I was told I had RSD almost two years ago after a sprain to my left ankle.
[more..]
- Living with RSD - by Bianca - (Wed, Jan 21 2009)
Hi im bianca Im only 16. i have lived the past 5 1/2 months with rsd.
[more..]
- I want to alarm all - by Lana - (Wed, Jan 21 2009)
I was given a injection of the medecation Phenegrn by IV push in my left hand.
[more..]
- A change in my life - FOREVER! - by Kelly - (Wed, Jan 14 2009)
2 years ago, March 2007. A beautiful day. A drive in the van with my husband and our 2 year old grandson for a day together and then, out of nowhere, in an instant, my life has changed FOREVER! A speeding car and an inattentive driver running a stop sign had left me with several dislocated vertebre in my neck, an injured shoulder and some kind of strange, horrific pain in my left arm.
[more..]
- RSD - by diana - (Mon, Jan 12 2009)
Hi, my name is Diana, and I too live with RSD. I was in a car accident 2 years ago, and I broke a bone in my foot called the cuboid. Well, I have had 7 nerve blocks, and the last one I had made me feel worse.
[more..]
- rsd - by Betty - (Fri, Jan 09 2009)
Hi,My name is Betty and I have had rsd for 3 yrs.I got after hip surgery.I have it in my lower left extremity and believe it has spread to my shoulder I have a nerve encrouchment in my neck and with pt the pain is unreal.
[more..]
- crps new story - by strong in spirit - (Fri, Jan 09 2009)
Hi well i have been off work for 7 weeks and today i have been told i have this crps ,pain filled pins and burning pain that wont give up.
[more..]
- RSD caused by wrongful foot surgery - by glenda - (Thu, Jan 08 2009)
I would like to tell my story about rsd.I was told by my family doctor about 4 years ago that I had this and I was caused by wrongful foot surgery. I fell apart and then thought I was not going to let it get to me and bring me down.
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- learning to cope with rsd - by tania - (Wed, Jan 07 2009)
hi My Name is Tania and i have just been diagnosed with rsd after a misdiagnotion 6 months ago.
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- Living with RSD 20 Plus years - by diane - (Tue, Jan 06 2009)
After reading a few of these stories, I knew I needed to write, I too have RSD over 20 years, My right arm, And now my upper body has been taken over, I type with two fingers.
[more..]
- RSD…..Mis-Diagnosed - by annie - (Tue, Jan 06 2009)
Well here I go:My story of RSD.
I was opening my own business, Peanut Brittle, home made chocolate and all the candy you can’t find here in this up-state community: (only in the city, N.Y.) I had started the business called “Anise Best” back in 1985, but only did wholesale. Now I’m going to open a store front!!
[more..]
- learning to relive - by Samantha - (Tue, Jan 06 2009)
Hello my name is Sam, I’m very new to all of this. I have lived with chronic pain most my life as that I’ve had numerous surgery and things.
[more..]
- RSD–the unrelenting pain - by dar in pa - (Fri, Jan 02 2009)
Hi,
I am new to this site. I hope I am doing things right. I have been an RSD “victim” for over 20 years.
[more..]
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