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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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learning to relive
by: Samantha
on Tue, Jan 06 2009
Hello my name is Sam, I’m very new to all of this. I have lived with chronic pain most my life as that I’ve had numerous surgery and things. I recently had surgery to remove a tumor in my right ankle and scope it out. It was worse then the had thought and I will be dam if I didn’t get RSD. Not like I had enough to deal with in my life.
I am newly married have 3 teenage step-sons I think of my own, a handicap daughter and 3 new grand babies. I lived the run of the mill life and I was happy with my life. I had a job and my family. My hubby and I enjoy riding the the bike to rallies and just putting around with our friends. The boys are really into the 4-wheelers and we ride quite a bit. Well you have the picture we are very active people. 3 months ago they tell me I have RSD
I go from being active to the couch with leg up using crutches and looking into a wheelchair. Using crutches is a joke, I am unstable and fall quite a bit. I’m not sure were I fit in now. It has crippled me a a very fast rate. My right leg is totally unusable and I have not responded to treatment well. I’m on my 4th pain pump (which I hate them) They hurt worse then the pain sometimes. Pain meds are a joke. Made an appointment with pain clinic at the end of the month. PT (tried that) is totally out of the question and nothing can touch my leg and I cant use it let alone move it.
My Family is trying to deal with it but I don’t know to help them. I do know they get tired of having to help me with everything. I hate asking for help. I’m tired but can’t sleep. I forget things and feel like I’m losing my mind. I’m emotional wreck and don’t know how to deal with everything. I’m trying to support my family and husband but don’t know how.
I really would like to find someone with my spouse that is dealing with the same thing. So he can talk to, help him find the help he is needing to cope with is also. He always worried about me and I hate telling him I hurt everyday. Lets face it I hate telling anyone I hurt. Ok now that I have rambled on and on. Sorry about that. I do think this is a great site and I got alot from it. Look forward to meeting new friends. I normally am happy upbeat person looking forward to finding her and bring her back.
Comment on this
Comments
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Wed, Aug 05 2009
Wow as the saying goes your preaching to the choir, I've had RSD since 05 and I was an active, energetic person, pain meds are not working for me eith...Read
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Thu, Jul 30 2009
Hi Sam,
I'm doing about the same as you---hanging in there and taking each day and whatever comes with it. Haven't found any drs. that can do muc...Read
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Wed, Jul 29 2009
Hi darline. It been awhile since I"ve talk to you. How are you doing?? I have missed you. I'm hanging in there. Pretty much givin up on the do...Read
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Tue, Jul 21 2009
Hi Sam and Sammy,
I haven't heard from either of you in a long time. Are you both doing ok? Miss talking to each of you.
If you are readin...Read
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Tue, Feb 10 2009
Hi Sammy,
Glad to have you back among us; know all about feeling so bad you can't even get out of bed.I hate those kind of days. I hope you are f...Read
January 2009
- RSD - by Ursula - (Wed, Jan 28 2009)
In 1996 I was diagnosed with RSD and I realised almost immediately that Doctors do not understand RSD but what became phenomenal is how RSD affected my eyes and consequently my vision which eventually became internal vision of unbelievable magnitude.
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- the car that struck and drove away - by Laurie - (Mon, Jan 26 2009)
Three years ago I was a manager of a local gas station I was doing some work around a gas pump and turned and was struck by a car cutting thru the parking lot to avoid a red light.
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- just dealing - by francomom3 - (Fri, Jan 23 2009)
Well I was told I had RSD almost two years ago after a sprain to my left ankle.
[more..]
- Living with RSD - by Bianca - (Wed, Jan 21 2009)
Hi im bianca Im only 16. i have lived the past 5 1/2 months with rsd.
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- I want to alarm all - by Lana - (Wed, Jan 21 2009)
I was given a injection of the medecation Phenegrn by IV push in my left hand.
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- A change in my life - FOREVER! - by Kelly - (Wed, Jan 14 2009)
2 years ago, March 2007. A beautiful day. A drive in the van with my husband and our 2 year old grandson for a day together and then, out of nowhere, in an instant, my life has changed FOREVER! A speeding car and an inattentive driver running a stop sign had left me with several dislocated vertebre in my neck, an injured shoulder and some kind of strange, horrific pain in my left arm.
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- RSD - by diana - (Mon, Jan 12 2009)
Hi, my name is Diana, and I too live with RSD. I was in a car accident 2 years ago, and I broke a bone in my foot called the cuboid. Well, I have had 7 nerve blocks, and the last one I had made me feel worse.
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- rsd - by Betty - (Fri, Jan 09 2009)
Hi,My name is Betty and I have had rsd for 3 yrs.I got after hip surgery.I have it in my lower left extremity and believe it has spread to my shoulder I have a nerve encrouchment in my neck and with pt the pain is unreal.
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- crps new story - by strong in spirit - (Fri, Jan 09 2009)
Hi well i have been off work for 7 weeks and today i have been told i have this crps ,pain filled pins and burning pain that wont give up.
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- RSD caused by wrongful foot surgery - by glenda - (Thu, Jan 08 2009)
I would like to tell my story about rsd.I was told by my family doctor about 4 years ago that I had this and I was caused by wrongful foot surgery. I fell apart and then thought I was not going to let it get to me and bring me down.
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- learning to cope with rsd - by tania - (Wed, Jan 07 2009)
hi My Name is Tania and i have just been diagnosed with rsd after a misdiagnotion 6 months ago.
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- Living with RSD 20 Plus years - by diane - (Tue, Jan 06 2009)
After reading a few of these stories, I knew I needed to write, I too have RSD over 20 years, My right arm, And now my upper body has been taken over, I type with two fingers.
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- RSD…..Mis-Diagnosed - by annie - (Tue, Jan 06 2009)
Well here I go:My story of RSD.
I was opening my own business, Peanut Brittle, home made chocolate and all the candy you can’t find here in this up-state community: (only in the city, N.Y.) I had started the business called “Anise Best” back in 1985, but only did wholesale. Now I’m going to open a store front!!
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- learning to relive - by Samantha - (Tue, Jan 06 2009)
Hello my name is Sam, I’m very new to all of this. I have lived with chronic pain most my life as that I’ve had numerous surgery and things.
[more..]
- RSD–the unrelenting pain - by dar in pa - (Fri, Jan 02 2009)
Hi,
I am new to this site. I hope I am doing things right. I have been an RSD “victim” for over 20 years.
[more..]
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