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My RSD story
by: NIKKI on Fri, Dec 26 2008
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I have R.S.D with Rhuematoid [Rheumatoid] Arthritis and Fibromyalgia to name a couple of my severe conditions (all developed from a fall on ice). I broke my left ankle on February 1, 2003. It is December 25, 2008, no one can see it and no one will believe you until you find a good doctor who truly listens to your cries for help. By the time I found a doctor to help me with my R.S.D was Dec. 2005.

I had suffered for so long I couldn’t take anyone touching me. People thought I was going crazy or it was all in my head. I wouldn’t stop asking for help and doctors/emergency rooms kept turning me away. I protected my left leg as if it were a brand new precious baby, I could not take vibrations, loud noise, stomping, clapping loud voices, unexpected noises, motorcycles or loud vehicles going by, too much cold nor too much heat! My pain was uncontrollable, unbearable, unreal and unbelieveably severe. You know your body, don’t stop until you get the help you need.

If your doctor doesn’t help you, leave them or ask them to refer you to a specialist(neurologist). It will only get worse and worser. My body hurts somewhere everyday. The day I wake feeling good. I’m so far behind on my life, daily tasks, chores, and business, I try to do so much and I end up over doing it and I’m back screwed up again. If you have people to help you ask them and make sure you ask them on your worse days so they can see how this disorder immobilizes you seriously and it’s not a joke or a game. People never know until it happens to them.

I used to never have a pain in the world, now everyday I suffer in some way from 1 of my conditions. I am not the same person and I have learned I never will be! This disorder will drive you crazy because its so complex and a lot of doctors are not familiar with it! Don’t suffer like I did fight for your health because if you don’t no one else will!
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  1. Fri, Jan 02 2009
    Subject: -------------------------------------------------------------------------------- Topic review Hi Nikki, I understand your pain. My ...Read

December 2008

  • My RSD story - by NIKKI - (Fri, Dec 26 2008)
    I have R.S.D with Rhuematoid [Rheumatoid] Arthritis and Fibromyalgia to name a couple of my severe conditions (all developed from a fall on ice). I broke my left ankle on February 1, 2003. [more..]
  • my 13yr old daughter was just diagnosed with crps - by Danielle - (Tue, Dec 23 2008)
    about the middle of nov. of this year my daughter’s right arm started to hurt and swell up. [more..]
  • RSD/CRPS - by Mike - (Fri, Dec 19 2008)
    Hi all my name is Mike and I have RSD/CRPS for 14years. [more..]
  • RSD…33 going on 80 - by Leigh - (Thu, Dec 18 2008)
    All through high school I was active. I played football, wrestled, and was on the weight lifting team. I was never tall, only 5′10″, but always strong and active. [more..]
  • long and windy road - by la - (Thu, Dec 18 2008)
    well it began with the misdiagnosis of a problem with my brain from one doctor and then another doctor just didn’t beleive that someone would be in so much pain and just HAD to be a drug seeker and then finally with the blessing of the right doctor it was inevitable that rsd was the culprit of everything. [more..]
  • RSD in Hawaii - by april - (Tue, Dec 16 2008)
    Aloha, I am searching for a group or person in Hawaii I can connect with. My roller coaster ride with RSD started back in spring 2007. [more..]
  • RSD - by CINDY R. - (Mon, Dec 15 2008)
    I broke my fibula. After the doctor on call didn’t come to the ER after the ER doctor called him, with his instructions, they applied a splint. [more..]
  • My Father - by AC - (Mon, Dec 15 2008)
    MY father was misdiagnosed for almost four years with a variety of different things. However, in the past year we have now only found the problem…which is RSD, but have yet to recieve the help and soultion for this problem. [more..]
  • getting really depressed with RSD - by wendy - (Thu, Dec 11 2008)
    this is the third time i have wrote here my first was in may 08 after being diagnosed with rsd in march [more..]
  • Story Without an Ending - by Carol - (Wed, Dec 10 2008)
    After reading lots and lots of stories, I finally decided to post mine. In October of 2006, I was diagnosed with an inflamed nerve in my leg. [more..]
  • From on the go… to slow - by DN - (Tue, Dec 09 2008)
    I was told today that I have RSD. I injured my right foot at work last month by a ladder falling on it. My driving foot. [more..]
  • The party /and engagement that changed my life - by Kathy - (Tue, Dec 09 2008)
    I gave a 60th birthday party,i was the one who got the suprise i was asked to be married, i was bumped on the dance floor (i was just walking across the floor) and was hip checked i didn’t expect it i fell breaking my bones very bad in my wrist, had a pin on one side and they had to put a plate in. [more..]
  • i have rsd - by charles - (Fri, Dec 05 2008)
    this is a painful to have but i have found so help in drinking orange juice and alot of fruit and thinking about anything but your pain [more..]
  • Robert’s journey - by Robert - (Tue, Dec 02 2008)
    My name is Robert Roebuck I am 44 years old was diagnosed with RSD [more..]
  • The End Of A Soldier - by Cheri - (Tue, Dec 02 2008)
    My previous career was in the US Army as a senior NCO, and during a hiking expedition, I fell and injured my legs and back. Within three months of the accident, I was diagnosed with RSD in my right leg. [more..]

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