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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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my 13yr old daughter was just diagnosed with crps
by: Danielle
on Tue, Dec 23 2008
about the middle of nov. of this year my daughter’s right arm started to hurt and swell up. I took her to our local E.R. they ran blood tests but found nothing. that was on a friday then that monday i took her to her regular doc. which then referred her neurologist. she ordered more blood tests x rays mris and nothing.. so said it was crps.. since then the pain for her has been unbearable..
I am doing the best i can for her but i feel like it’s not enough.. she has missed a lot of school and when she does go she might not make it all day.. now her regular doc. thinks it might not be crps because it is in more places on her body.. he wants her to see a rheumatologist . so we are in limbo… she also has Hemifacial Micrsomia.. it’s a birth defect she was born with..I feel like our lives have been turned upside down.. just wanted to talk to other people that would understand..
Comment on this
Comments
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Tue, Jan 13 2009
My son had RSD for 3 months and is now cured thanks to this physiatrist in NY.
If you live anywhere near NY and are interested in more info you can ...Read
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Wed, Jan 07 2009
Hi,
The site I have found the most helpful over the years is rsdhope.org. This was set up by Keith Orsini and his parents. Keith is now in his...Read
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Wed, Jan 07 2009
My daughter too was just diagnosed with rsd on January 5th 2009. It is in her right leg. She has been on crutches for 4 weeks. We are starting therapy...Read
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Sat, Jan 03 2009
Hi Danielle,
I am a 51 year old female with RSD for over 20 years. My "back injury" was improperly diagnosed 20 years ago and, I was...Read
December 2008
- My RSD story - by NIKKI - (Fri, Dec 26 2008)
I have R.S.D with Rhuematoid [Rheumatoid] Arthritis and Fibromyalgia to name a couple of my severe conditions (all developed from a fall on ice). I broke my left ankle on February 1, 2003.
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- my 13yr old daughter was just diagnosed with crps - by Danielle - (Tue, Dec 23 2008)
about the middle of nov. of this year my daughter’s right arm started to hurt and swell up.
[more..]
- RSD/CRPS - by Mike - (Fri, Dec 19 2008)
Hi all my name is Mike and I have RSD/CRPS for 14years.
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- RSD…33 going on 80 - by Leigh - (Thu, Dec 18 2008)
All through high school I was active. I played football, wrestled, and was on the weight lifting team. I was never tall, only 5′10″, but always strong and active.
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- long and windy road - by la - (Thu, Dec 18 2008)
well it began with the misdiagnosis of a problem with my brain from one doctor and then another doctor just didn’t beleive that someone would be in so much pain and just HAD to be a drug seeker and then finally with the blessing of the right doctor it was inevitable that rsd was the culprit of everything.
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- RSD in Hawaii - by april - (Tue, Dec 16 2008)
Aloha, I am searching for a group or person in Hawaii I can connect with.
My roller coaster ride with RSD started back in spring 2007.
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- RSD - by CINDY R. - (Mon, Dec 15 2008)
I broke my fibula. After the doctor on call didn’t come to the ER after the ER doctor called him, with his instructions, they applied a splint.
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- My Father - by AC - (Mon, Dec 15 2008)
MY father was misdiagnosed for almost four years with a variety of different things. However, in the past year we have now only found the problem…which is RSD, but have yet to recieve the help and soultion for this problem.
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- getting really depressed with RSD - by wendy - (Thu, Dec 11 2008)
this is the third time i have wrote here my first was in may 08 after being diagnosed with rsd in march
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- Story Without an Ending - by Carol - (Wed, Dec 10 2008)
After reading lots and lots of stories, I finally decided to post mine. In October of 2006, I was diagnosed with an inflamed nerve in my leg.
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- From on the go… to slow - by DN - (Tue, Dec 09 2008)
I was told today that I have RSD. I injured my right foot at work last month by a ladder falling on it. My driving foot.
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- The party /and engagement that changed my life - by Kathy - (Tue, Dec 09 2008)
I gave a 60th birthday party,i was the one who got the suprise i was asked to be married, i was bumped on the dance floor (i was just walking across the floor) and was hip checked i didn’t expect it i fell breaking my bones very bad in my wrist, had a pin on one side and they had to put a plate in.
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- i have rsd - by charles - (Fri, Dec 05 2008)
this is a painful to have but i have found so help in drinking orange juice and alot of fruit and thinking about anything but your pain
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- Robert’s journey - by Robert - (Tue, Dec 02 2008)
My name is Robert Roebuck I am 44 years old was diagnosed with RSD
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- The End Of A Soldier - by Cheri - (Tue, Dec 02 2008)
My previous career was in the US Army as a senior NCO, and during a hiking expedition, I fell and injured my legs and back. Within three months of the accident, I was diagnosed with RSD in my right leg.
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