Living with RSDThis section is a place to share stories about Living with RSD Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download One Day At A Time 
HI, To make a long story short, my PCP ordered an emg test for my right leg, and the results were: Chronic right leg Radiculopathy,(I hope I spelled that right.), and I could be in the early stages of RSD He was a D.O., so I trusted his diagnosis. By now I had completed all my therapys’, which included P.T and Aqua therapy, and I’m glad I did. I learned early on you have to stay active if you have RSD, or atrophy will set in on your muscles, and I have some of it in my leggs. The RSD first started in and around my right ankle, then spread up the whole leg. Not long after it spread to my left leg and ankle, then up to my groin area and torso, both left and right side. Next my arms and hands were afflicted. I know I have rambled, but this is my story. Finally I want to talk about the emotional side of RSD, which is very important! As soon as I was diagnosed with RSD, I looked up as much Information on the disease as possible. At first I was angry, because of the no cure aspect of RSD, and all of the pain I was enduring. I’ve been told by 2 different Doctors that you can only take care of about 50 or 60% of the pain!. I took my anger out on my wife and kids, which is not what I intended to do, but I had to go through the emotions. Depression soon set in which is a part of RSD or any form of chronic pain. My medicine cabinet looks like a pharmacy, but the medications do help. I have found that what is best for me is to take the medications as prescribed and find people to talk with, concerning the pain that RSD brings on. I went to a Psychologist for a few months and it really helped me sort out my feelings. The most important thing is not to overdo it. Get to know your body, and find out what you can do or can’t do!. I would say most of my flair ups are caused by overdoing it. I hope this has helped someone because I could write a book on everything I’ve experienced with RSD, and I like to help others who have this horrible disease. Thanks, Jeff
October 2008
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