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This section is a place to share stories about Living with RSD
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Learning about RSD
by: Rebecca
on Wed, Oct 01 2008
I’ve been reading y’alls stories and am trying to learn more about this. I broke my leg (bimalleolar) on June 5 while skating with a church youth thing. I’m 38. Single mom of 3 teens. I had surgery on June 13th, when I went back in july to have my first cast removed my rt. leg was so swollen and discollored so the dr kept me in a cast for another 4 weeks. Then gave me and equilizer walking boot which took me a while to get used to. By time I almost got used to it the doc said it was time to quit using it and he wanted me to get rid of the crutches too. That’s been almost impossible. I do have good days but mostly bad.
My last xrays looked ok. I have plates and pins in place. I feel like something else is wrong, even if the bones are healed. My skin looks reddened, Stays swollen, above my ankle is shiny and edenemous. I’ve been going through Phys. Therapy since 8/28 but still not walking. They put me in aquatics to help with my balance. Some mornings I walk in there with crutches and feel ok but once I start stretching and trying to stand on that bad leg it hurts worse and feels like I’ve pinched a nerve. I get shooting pains down my leg too.
Hot baths seem to soothe me if I do it along with a pain pill. I feel like the surgeon or therapist doesn’t understand when i try to tell them what’s going on. They make it seem like i’m trying to be difficult but i’m not. I’m an LVN so I deal with alot of illnesses and have empathy for my patients and I know my body. I know I should be walking and feeling fine by now but i’m not. I try hard and push myself to walk but it’s just not happening. My 12 weeks of medical leave is up and I don’t think I even have a job to go back to. I’m about to lose my vehicle. Ive had help thru the summer from agencies with utilities. I owe my landlords alot. They’ve been so good and understanding.
I think I should go to a regular doctor and tell them all this and see if there’s anything else going on. I don’t think I have osteomyleitis because i’m not running a fever. I have 2 buldged disk, herniated disk and degenerative disk disease I was dxed with back in 04 so that doesn’t make things easier. I should of got a handicap parking permit back in June but I didn’t think I’d be down this long. I’ll take any advice I can get at this point. Thanks.. Rebecca
Comment on this
Comments
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Mon, Oct 06 2008
I am a 40 yr old female diagnosed with RSD 4 years ago, but accident occurred in 1998, I went years without proper diagnosis. It seems to me you have...Read
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Wed, Oct 01 2008
I just wanted to add that I did go to the Doctor the next day. He prescribed me Tegretol for the nerves in my foot and said I could be down another 3-...Read
October 2008
- Loss of Use - by Robert - (Thu, Oct 30 2008)
I am a classical guitarist. On May 15, 2007, a careless driver caused me to have a bicycle accident and I fractured my left wrist. Fortunately, the fracture healed rather well and within four months after the fracture I was performing again. Unfortunately, I developed RSD beginning in July 2007.
[more..]
- Living with RSD as a Teenager - by Ms J - (Thu, Oct 30 2008)
I was diagnosed with RSD when i was 13 years old. It was very scary because i had just woke up with it. I ignored it for the first day because I thought it would just go away but it didn’t.
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- rsd both hands and left leg - by josie - (Thu, Oct 30 2008)
I broke my right hand/arm Dec5/05 and since then rsd has spread to my other hand/arm and my left leg. I have bad headaches that cause my to be sick to my stomach daily from pain.
[more..]
- 8 Years and running - by DB - (Tue, Oct 28 2008)
I got RSD when I was 9, and I am now 17 still, living with the pain, but able to block it out most of the time.
[more..]
- RSD My Personal Nightmare - by Chris - (Tue, Oct 28 2008)
I was diagnosed with RSD appx.1 yr.ago.
[more..]
- RSD and my life - by Robin - (Tue, Oct 21 2008)
I am a nurse from ohio and have developed this outrageous condition called RSD. I didnt know much about it till it happened to me. I was lifting a patient to prevent her from falling and it started with shoulder surgery and then led to carpal and cubital tunnel surgery and now I am left with RSD.
[more..]
- Is there any hope of being normal again? - by R - (Mon, Oct 20 2008)
I have been unable to use my left leg for over four months now. I was a senior manager at a bank. One day, I left for lunch, and a girl ran a red light. She hit me in my driver door.
[more..]
- hurt - by af - (Fri, Oct 17 2008)
I got rsd over 15 years ago. I have it from a fall at work. I can no longer work. I can not even cut my own nails cause of pain.
[more..]
- Winning Life With RSD - by RSD Coach(tm) Marla - (Wed, Oct 15 2008)
Hi Everyone. I am a 46 year old woman who has been living with RSD for 5 years now, but I turned all the negative into a positive.
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- Stuck in the blame game no where to limp 2. - by James - (Tue, Oct 14 2008)
Friday, October 10, 2008
S.A.I.F. sent me a Workers compensation claim letter of denial.
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- Too Young? - by Carlie - (Tue, Oct 14 2008)
I am 17 years old. I was diagnosed with RSD two years ago after two shoulder surgeries because of an injury when I was 14.
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- RSD - by Carolyn S. - (Tue, Oct 14 2008)
I am 8 weeks out from a long finger trigger release and still not sure if I have RSD.
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- Normal Life with RSD? - by J. K - (Mon, Oct 13 2008)
I was diagnosed with RSD after a foot surgery five years ago. I am a military spouse and have moved around quite a bit which means I have changed pain management doctors a few times.
[more..]
- Living with the pain…. - by Sara - (Mon, Oct 13 2008)
Hello, my name is Sara and 14 years ago they told me that I had RSD. Only being a child I guess That I did not understand just what they were talking about and how bad my future looked. Its a good thing because I was a normal child, teenager and even a young adult.
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- rsd and how it has changed my life - by pat - (Mon, Oct 13 2008)
i was a constution worker all my life till one day a man ran a stop sign and hit my car in the drivers door it happened nov 5 1991
[more..]
- LIVING WITH HELL - by sb - (Thu, Oct 09 2008)
I am 53 and have been sufering with RSD for five year.Hell is a mild word others spring to mind but i will stick to hell.
[more..]
- One Day At A Time - by Jeff - (Tue, Oct 07 2008)
HI,
My name is Jeff, and I have full body RSD. I developed RSD following 3 back surgeries in a period of 4 months. I think it was the 2nd surgery that gave me the monster.
[more..]
- Me and RSD for 14 years - by Sandi - (Tue, Oct 07 2008)
Hi my name is Sandi. I’ve had rsd for 14 yrs. I got it after a hip replacement.
[more..]
- Teacher caught in the crossfire - by Diane - (Wed, Oct 01 2008)
I am a 48 year old female teacher with rsd and I have been with this for 6 years now. I was told to help break up a fight and have been paying for it physically ever since.
[more..]
- RSD for 8 1/2 years - by Lisa - (Wed, Oct 01 2008)
Hello my name Lisa Rodriguez. I developed it when I jumped in to save my Mom from hitting the back of her head, by doing this I shattered my Knee-cap. Everything went wrong when I had surgery.
[more..]
- Learning about RSD - by Rebecca - (Wed, Oct 01 2008)
I’ve been reading y’alls stories and am trying to learn more about this. I broke my leg (bimalleolar) on June 5 while skating with a church youth thing. I’m 38. Single mom of 3 teens. I had surgery on June 13th, when I went back in july to have my first cast removed my rt. leg was so swollen and discollored so the dr kept me in a cast for another 4 weeks.
[more..]
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