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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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Wife of a husband W/ RSD
by: Shari
on Mon, Sep 08 2008
Hi everyone my name is shari I my husband lou has been living with rsd for almost 4 yrs now and he’s been absolutely going crazy he had an injury with his left foot at work where a box of bolts broken open form the bottom and fell on his foot needless to say it approx about 50lbs.
since then he’s had to surgery one with an extractor and then they had to go in and fuse the bone together in his toe with a metal plate and 5 screws on top of it. He’s tried everything so far and nothing seemed to work he’s got threw different pain clinics and just recently he hooked up with a doctor in pittsburg pa who does botox on his leg which helps relax the ankle, and seeems to help some. But lately he has been having extremely severe pain his his right foot so now we think it might be spreading over to there.
He has tried several different treatments and nothing seems to work but however he did finally find something that will help and it is called and spinal cord stimulator he will be having a permanent one put in on sept 17th , which is so amazing he went thru a trial run with the ams stimulator and after all these years he was able to have someone touch his foot walk on it flat and he could actually handle the pain, so I keep my fingers cross that this permanent one stays that way.
I agree with you , it is alot of patience and I have of alot of time and love with him over this , it’s been hard but we are determine to beat this together.
Comment on this
Comments
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Fri, Sep 26 2008
Hi Shari, I was wondering how your husband is doing with the spinal cord stimulator. We are trying something called intravenous fusion in 2 weeks. ...Read
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Fri, Sep 26 2008
I have to say to you and all of you who are spouses of people with RSD ...way to go. I'm 49 years old and have been struggling for 11 years with RSD,...Read
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Sun, Sep 14 2008
Hi Shari, my husband suffers from RSD as well. He fell approx 12 feet and had 2 surgeries ending with an ankle fusion of both upper and lower joints....Read
September 2008
- 20 years old n have rsd - by niki w - (Mon, Sep 29 2008)
Hi i just got out of hospital after being diagnosed with rsd. it started about 4 months back with my right ankle starting to ache, then it progressed enough for me to go to the docs, i was prescribed painkillers and told to get on with it, i then went back and had an x ray which showed the start of arthritus.
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- rsd in left leg - by pss - (Mon, Sep 29 2008)
I am a 38 year old female with rsd and I have been with this for 3 years now. At first I was told that I may have had just a large hematoma and that over time it would heal. Ha not so , now I am on so much meds. that I just hate my life style.
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- Ten years with RSD - by Kim - (Mon, Sep 22 2008)
Hi, my name is Kim and I’ve been living with RSD for ten years now. I was an RN and fell at work. I broke my wrist and immediately had severe swelling, sensitivity to hot and cold, color changes and sensitivity to touch.
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- 23 YR OLD WITH BROKEN ANKLE - by DIANA G. - (Mon, Sep 22 2008)
Hi my name is Diana I live on Long Island NY and I fell coming out of my car on a parking lot of a store on 7/13/08 (I was getting a birthday cake for my mom) there was a sewage drain below ground level with cracked and uneven pavement around it. As I was comming out of my car and put my left foot on the ground and release the other foot from the running board of the car I fell and my ankle broke
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- RSD/CRPS The Invisible Destroyer - by Keith - (Fri, Sep 19 2008)
Greetings all,
My name is Keith. I am now 54 years old. I have spine degeneration issues that led to a spinal cord injury in my cervical area from a hard coughing spell about 11 years ago.
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- a diagnoses of RSD is scary - by kjk - (Wed, Sep 17 2008)
my name is not important my story could be. maybe it can help someone. i am a female, over fifty, i fell and broke my arm, both bones.
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- my story about rsd - by amy - (Tue, Sep 16 2008)
hi my name is amy harshey and i am a 40 yr old woman from pennsylvania, I also am a patient with rsd, cprs.
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- This is just no way to live - by TJ - (Tue, Sep 16 2008)
Back in 1983 I was involved in a single car accident at the time I had a great job driving a cement mixer the pay was good the people I worked with were a good bunch of guy’s I had been there for six year’s life was great, I had a great credit score and was two week’s away from buying a cabin which I had been renting.
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- Feels like it’ll never end - by michelle - (Mon, Sep 15 2008)
Hi, I got hurt at work loading a semitrailer in a discount/retail store. First dr. I saw said it was nothing, put an ace bandage around my left knee at a bending restriction on me and sent me back to work with a follow up app. in one week, not even an x-ray.
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- rsd sucks - by kim - (Thu, Sep 11 2008)
i had surgery to repair my tendon in my right thumb 4/23/08. started physical therapy and it was going ok until 6/13/08 when I started having pain in my hand and my arm. The surgeon diagnosed me with rsd and started me on 300mg nuerontin 3x aday.
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- My Broken Foot - by keith t. - (Wed, Sep 10 2008)
i was attacked one evening and i received a broken disslocated ankle with torn muscles as well.
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- My story - by Chelle - (Tue, Sep 09 2008)
I fell in at church one Sunday off of my high heels. I was taken to the ER and they diagnosed me with a sprained foot and put me on crutches.
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- This is my 4th bout with RSD - by Mary Ann - (Tue, Sep 09 2008)
In 1992, I broke my leg and ankle. It wasn’t until about 2 weeks after the cast was removed that the symptoms began. Burning pain, color change of skin, etc.
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- RSD Surviver - by LG - (Tue, Sep 09 2008)
I was in a bad car accident. I’ve have several operations.I have five children and was on heavy pain medicine.I was suffering from this very painful condition up until 3 months ago when I started drinking the Acai berry juice.
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- more treatment - by wendy - (Mon, Sep 08 2008)
hi my names wendy i was diagnosed with RSD in feb 08 and i wrote on here then this is jus an update .i have now had 1 nerve block that didnt do anything for me ,now i have to wear splints on my fingers as they are bending in the wrong direction and twisting
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- Wife of a husband W/ RSD - by Shari - (Mon, Sep 08 2008)
Hi everyone my name is shari I my husband lou has been living with rsd for almost 4 yrs now and he’s been absolutely going crazy he had an injury with his left foot at work where a box of bolts broken open form the bottom and fell on his foot needless to say it approx about 50lbs.
[more..]
- After the fall - by Mark C. - (Thu, Sep 04 2008)
I had a fall in April 2005 and by June, I had developed AVN (avascular necrosis of the femoral head). The surgeons did not want to do surgery on me until the condition advanced the next year. I then had a heart attack was on blood thinners and the surgeons wouldn’t consider surgery until I was off of the thinners.
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- RSD and my life now - by Cheryl - (Tue, Sep 02 2008)
I am now a 50 yr old woman, about 11 yrs ago I fell in a parking lot, I not only fell but I bounced up and hit the street again. That was July 4, 1997. Since hat date I have had 3 knee and back surgeries, the pain I was in was something I never had before.
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- RSD - by Cathy - (Tue, Sep 02 2008)
My 17 year daughter is suffering with RSD (her second episode) after 2 surgeries from a condition called rigid flat feet where the bones in your feet are fused together.
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- wife of husband w/RSD - by tam - (Tue, Sep 02 2008)
Hi,everyone! i’m sorry for all of you. i don’t have RSD but, my husband does. it’s been over 5 years now.
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