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Living with RSD

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There is hope
by: Jen on Tue, Aug 26 2008
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I am a 25 year old mother of 3 precious little girls and I would like to share my story with all of you.I have always lived a very active lifestyle. I am a very hands on mother and worked as a resturant supervisor, which I loved and was very good at. March 10, 2007 started out like any other day, I played with my babies, then they were 5,1, and 4months, then I went to work. I was doing our bi-weekly inventory at the end of the evening. I was counting full beer kegs in our cooler and suddenly slipped. I didnt have time to think and as I was falling I grabbed a keg which was stacked 2 high to steady myself.This clearly wasnt the best coarse of action, as the top keg landed directly in the middle of my left foot.

A full keg weighs 385 and it fell from 3 feet so needless to say IT HURT!!!!! I went directly to the er and had to be put into a cast for 10 weeks.The whole time I knew somthing was terribly wrong, my foot didnt seem to be geeting better, only worse.Once the cast was off my ortho recomended physical therepy but because the RSD was not even an afterthought for the ortho or the physical therepist the therepy was geared the wrong was and didnt end up helping at all.

About 18 weeks into the injury my ortho sat me down and told me that their was a possibilty that I had RSD and he was refearing me to a pain mgmt doctor for further treatment.I went to the new doctor and he confirmed that it was RSD with several test.I felt like I had the rugged pulled out from under me.I was 23 years old.Why?How?What now? Thats just a glimpse of what was running through my mind.

To date I have had 3 nerve blocks,aggresive PT geared twords RSD,and now have finally found the right combo of meds that is working for me.We are in the process of implanting a spinal cord stimulator.My RSD has now progressed to my entire leg.
Even though things are not as how I would have pictured at this point in my life I am getting by.

I take it day by day,hour by hour, and sometimes minute by minute.I am trying a new outlook on the situation and for now it seems to be working. I mean, insted of working my behind off I am getting to spend all day, every day with the best kids in the planet. My advice to anyone who is facing this is find a great team of doctors that have experience with this.If a med isnt working for you tell them!!!!! There has been a great deal of adjusting to my meds but im at a level now that lets me deal with the pain as well as not sleep all day. Lastly educate yourself as much as you can on this.Sometimes the worst part of somthing is the unknown. Find support in people that are facing this either though local support groups or here online.

Goodluck to you all and your in my prayers!!! Thanks for reading this LOOOONG entry.


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  1. Mon, Sep 01 2008
    My name is Brandy, I am 29 years old and I was diagnosed with RSD November 25, 2007. I have been through 4 nerve blocks and several medications. So fa...Read

August 2008

  • There is hope - by Jen - (Tue, Aug 26 2008)
    I am a 25 year old mother of 3 precious little girls and I would like to share my story with all of you.I have always lived a very active lifestyle. [more..]
  • don’t know who I am anymore - by cat - (Mon, Aug 25 2008)
    I am a 38 year old woman who was in a severe car accident in 12/02/05 in which the driver was killed, who I was seeing, and I was knocked out and thrown to the trunk of the car. Amazing to say I did not break a bone! [more..]
  • RSD - by CC - (Mon, Aug 25 2008)
    In DECEMBER 2007 I hurt my ankle and immediately went to the emergency room because I couldn’t walk-my foot had instantly swelled and I had a severe “pins and needles” feeling. My foot immediately swelled to twice it’s orig. size. [more..]
  • RSD I wish I understood in fully - by Tanya - (Mon, Aug 25 2008)
    I am 43 and have been fighting this diagnosis for 2 years now. I am a nurse and do a lot of lifing and pulling, and my job requires very specific skills with my hands. [more..]
  • RSD - by Valorie - (Tue, Aug 19 2008)
    I have Multiple Sclerosis, & Degenerative Disc disease in which I have had 1 cervical fusion and 4 lumbar fusions. Several months ago, I also work in a bank and have carpal tunnel, my right shoulder started hurting and kept getting worse to the point where I can not cut my food, brush my teeth, lift anything, or raise my right arm. [more..]
  • resently diagnosed - by Dawn - (Mon, Aug 18 2008)
    I am a 40 year old single mother of two girls. I recently filed for divorce and put my beautiful house up for sale when I found out I have RSD. I am a Banquet Manager which requires me to be on my feet much of the time. I don’t know how much longer I will be able to perform my job. [more..]
  • frusterated (swollen hand) - by Bjt - (Mon, Aug 18 2008)
    I have been having a problem with swelling only in one hand for about a year now.I have seen four doctors medical bone and joint rheumatoid and vascular.I have had bone scans scat scans lupus rhematoid inflamation test and all have come back normal. [more..]
  • RSD - by paige - (Tue, Aug 12 2008)
    I am living with this disease that has traped in my home. the RSD is in my chest wall under my rt. breast and down [more..]
  • Recently diagnosed with RSD…scared - by Sandy - (Mon, Aug 11 2008)
    Hi,I am a 43 year old mother of two wonderful teenage boys. My pain started in April of 2008 - After several tests and hand splits, I was diagnosed with severe carpel tunnel. I had surgery and immediately the symptoms got worse. [more..]
  • Accidents Happen - by dj - (Mon, Aug 11 2008)
    One split second and your life changes forever. I am a 57 year old women who has had a career, children and the best of life. I lost my arm in a mowing accident that was completely avoidable. I only have myself to blame, but aside from learning to live without a limb, I have developed RSD. [more..]
  • rsd - by rick - (Mon, Aug 11 2008)
    ok just found out a month ago i had rsd i broke my left ankle in feb 08 been threw all the therapy now the rsd and my doc does not seem to be to informed just now put me on nerurtion [more..]
  • My RSD story - by Josh - (Sun, Aug 10 2008)
    I recently just got told that I have RSD. I am just 28 years old. It originally started about 2 years ago when my knee swelled up and stayed swollen for close to a year. I went to several doctors and orthopaedic surgeons who completely misdiagnosed the problem as a strain. [more..]
  • My Horse Accident Resulting in RSD - by lisa - (Fri, Aug 08 2008)
    Almost 4 years ago I had a horse, very tame. All the sudden she went nuts on me. I held on for over five hundred feet before I knew I was out of control in the saddle. I quickly thought and took my feet out of the sturps. I did not want to be draged. I knew I was going down, so I thought about my body parts. went I thought what was the least thing that I could accept. I choose my right arm. Wrong decision! [more..]
  • I broke my foot, developed RSD - by Terri - (Fri, Aug 08 2008)
    My story about RSD isn’t as tragic as most people’s. I broke my foot almost 5 years ago to this day and developed RSD. Fortunately, my doctors were familiar with this condition so I got help sooner than most of the people I’ve read about. I too have had multiple blocks and now maintain on Lyrica. [more..]
  • My Crazy, Swollen Hobit Foot. - by ATG - (Thu, Aug 07 2008)
    I was recently diagnosed with RSD. See, I have a swollen foot, and have had a swollen foot for over two and half years. [more..]

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