Living with RSDThis section is a place to share stories about Living with RSD Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download RSD 
In DECEMBER 2007 I hurt my ankle and immediately went to the emergency room because I couldn’t walk-my foot had instantly swelled and I had a severe “pins and needles” feeling. My foot immediately swelled to twice it’s orig. size. I was told in the emergency room that I broke my foot and given pain medication (I tried to explain that I wasn’t in pain and that it was more of a numb feeling.) The ER doctor splinted my foot and told me to have it casted by an ortho. I started noticing that my foot was extremely cold and a purple color - since I have never broken a bone I assumed this was normal. A week later the ortho explained that it was actually a sprain and that I had CPRS and should immediately seek physical therapy I started that day. The therapist wasn’t familiar with the condition and instructed me to ice my foot. I started noticing that it felt better and the pins and needles feeling eased slightly when I soaked it in a hot bath or wrapped it in heat. The PT helped to desensitize the area and within a month of doing my PT at home, work and even in the shower - I was walking again. As for pain, besides the numbing “pins and needle” feeling the first month, I’ve felt only slight pain in my foot. I had experienced slight burning sensations in my leg dring weeks 3-5. While in PT I started to have nerve pain in my arms and back. My back became very sensitive to touch. I enlisted the help of an OT and within 3 weeks of weight training and desensitization- the pain disappeared. I had other symptoms that I couldn’t explain such as jaw pain and increased pulse (which could have been related to the fact that I went into panic mode after reading up on the diagnosis). I have been back to the gym for 5 months and only occasionally feel any discomfort. I’m not sure if this remission will last because every website seems to have a different theory. I was so dismayed by the treatment I received from the medical profession in general. I was shocked by the the assumptions made by medical professionals and by the way I was treated - that needs to change.
August 2008
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