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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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Looking for help in Arizona
by: Erin
on Wed, Jun 04 2008
My husband was injured at work 3 years ago - it went misdiagnosed for 6 month by the workers comp Dr and only after being granted a 2nd opinion did they find the injury. 2 surgeries and 2 1/2 years later he still has excruciating pain in his arm/shoulder and while several Dr’s have mentioned RSD they still haven’t given him an official RSD diagnosis.
He recently underwent a surgical procedure to further investigate the cause of his pain/symptoms and had developed the same symptoms in the surgery site/limb. I’ve contacted literally 100’s of Dr’s here but can’t seem to find anyone that specializes in RSD or at least has some good working knowledge of the disease - Is there anyone else out there on the West Coast that can refer us to someone ????
Comment on this
Comments
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Mon, Aug 11 2008
HI. Have you gone to the official RSD website www.rsds.org They might be able to refer you to someone or you can find out about some studies be...Read
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Mon, Jul 21 2008
hello in az, my name is bill and i too was just told i had rsd ,after getting the run around from 3 different doctors, after an on the job injury(crus...Read
June 2008
- MY RSD - by BRAD - (Mon, Jun 30 2008)
MY NAME IS BRAD I AM 25 YEAR OLD MALE FROM MARYLAND AND I SUFFER FROM RSD AND CRPS.
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- Wishing it would just stop hurting - by Yvette - (Wed, Jun 25 2008)
When I was 16 I was shot in the chest with an AK47 and was told I would be fine… SURE… if that wasn’t just the cruelest joke I had ever believed… my reconstructive surgeon was the only one that believed that I hurt every other doctor just looked at me like I was completely crazy..
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- L.P.N - by VIRGINIA - (Mon, Jun 23 2008)
TRAUMATIC NERVE INJURY TO RT LOWER EXT IN THE ANKLE/HEEL AREA, INJURY OCCURED ALMOST A YEAR AGO. I HAVE TRIED NUMEROUS MEDS. FOR THE NERVE PAIN HOWEVER NONE HAVE BEEN EFFICIANT IN ALLEVIATING THE PAIN, I SUFFER WITH BURNING AND SENSISITIVITY TO TOUCH ALONG THE BOTTOM OF MY FOOT.
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- My story - by Kathy - (Thu, Jun 19 2008)
I first posted my story when I was diagnosed with RSD in February of 2007in my left arm. Since that time I have had 30 Stellate Ganglion Blocks and 6 Radiofrequency Burns for shaking.
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- Recently Diagnosed with RSD - by Linda - (Mon, Jun 16 2008)
I had a knee injury at work in 3/07. WC made me wait 2 months before the doctor was able to perform arthroscopic surgery. I continued to work those 2 months, with burning/seering pain in my right leg/knee.
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- 5 years and counting trying to get help.. - by MS - (Fri, Jun 13 2008)
I was in a bad auto accident 9/11/2003 and was treated and treated and treated with no results, I finally went back to my family phys. and was given info and told he thought I had RSD in 2004, nothing was put in my records ect
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- Looking for help in Arizona - by Erin - (Wed, Jun 04 2008)
My husband was injured at work 3 years ago - it went misdiagnosed for 6 month by the workers comp Dr and only after being granted a 2nd opinion did they find the injury.
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- RSD - by plt - (Wed, Jun 04 2008)
I’m a 47 yr old women who has RSD. Have had it since 2002, I had leg surgery. And went to have the stiches taken out and it hurt like hell. That is when the Doctor said I think you may have RSD.
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- No where to turn - by Marney - (Mon, Jun 02 2008)
My name is Marney, 31yo from NJ. One month ago I had surgery for my P.F. I had 5 days where I had NO pain. After those 5 days(about 3 weeks after surgery), my foot swelled up and now the pain is constant and unbearable.
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