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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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No where to turn
by: Marney
on Mon, Jun 02 2008
My name is Marney, 31yo from NJ. One month ago I had surgery for my P.F. I had 5 days where I had NO pain. After those 5 days(about 3 weeks after surgery), my foot swelled up and now the pain is constant and unbearable. My foot doctor said I need to go to a pain mgmt dr. He said “OH You probably have RSD I will call your family dr” and walked out of the room. My PCP thinks that my foot pain is related to my back. BUT I have never been diagnosed with any back problems. I am so confused and wish I could wake up just ONE day without this pain. Now the pain goes to my knee and feels very “tight”, up my thigh to my hip and buttocks. My foot did turn purple a few times but doesnt stay purple. Everything hurts sitting, standing, and laying. I am on pain meds and it takes the pain from an 8 to a 6or7. I cant even walk with my kids to the ice cream shop. I have been looking into pain mgmt drs and still need to get an MRI of my lower back. I take Effexor for depression which causes some sweating. NOW, I sweat sooooo much (even when I am not hot), my hair looks like I just got out of the shower. I question if this is related. I should stay away from opiates but at this point it seems inevitable.
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Comments
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Wed, Jul 16 2008
Hello I am sorry I got that wrong, yes I see a doctor also in Baltimore at the pain center, he is a good doctor but also the first pain doctor I have ...Read
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Wed, Jul 16 2008
i read your repsonse to .... No where to turn. You mention that "no where to turn" was from Maryland... she is not the one from Maryland .....Read
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Tue, Jul 15 2008
Hello No where to turn, I was reading your story and I saw that you live in Maryland, and so do I and I was just recently diagonosed with RSD after ni...Read
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Thu, Jul 03 2008
I feel like I just read my own story.I am 29 years old and was just diagnosed a few weeks ago.I know excactly how you feel.It is in my right foot and ...Read
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Tue, Jul 01 2008
I read your story.... and felt like we were twins. I also have RSD in my left hand and arm. Im learning to live with the pain, but it is not an eas...Read
June 2008
- MY RSD - by BRAD - (Mon, Jun 30 2008)
MY NAME IS BRAD I AM 25 YEAR OLD MALE FROM MARYLAND AND I SUFFER FROM RSD AND CRPS.
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- Wishing it would just stop hurting - by Yvette - (Wed, Jun 25 2008)
When I was 16 I was shot in the chest with an AK47 and was told I would be fine… SURE… if that wasn’t just the cruelest joke I had ever believed… my reconstructive surgeon was the only one that believed that I hurt every other doctor just looked at me like I was completely crazy..
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- L.P.N - by VIRGINIA - (Mon, Jun 23 2008)
TRAUMATIC NERVE INJURY TO RT LOWER EXT IN THE ANKLE/HEEL AREA, INJURY OCCURED ALMOST A YEAR AGO. I HAVE TRIED NUMEROUS MEDS. FOR THE NERVE PAIN HOWEVER NONE HAVE BEEN EFFICIANT IN ALLEVIATING THE PAIN, I SUFFER WITH BURNING AND SENSISITIVITY TO TOUCH ALONG THE BOTTOM OF MY FOOT.
[more..]
- My story - by Kathy - (Thu, Jun 19 2008)
I first posted my story when I was diagnosed with RSD in February of 2007in my left arm. Since that time I have had 30 Stellate Ganglion Blocks and 6 Radiofrequency Burns for shaking.
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- Recently Diagnosed with RSD - by Linda - (Mon, Jun 16 2008)
I had a knee injury at work in 3/07. WC made me wait 2 months before the doctor was able to perform arthroscopic surgery. I continued to work those 2 months, with burning/seering pain in my right leg/knee.
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- 5 years and counting trying to get help.. - by MS - (Fri, Jun 13 2008)
I was in a bad auto accident 9/11/2003 and was treated and treated and treated with no results, I finally went back to my family phys. and was given info and told he thought I had RSD in 2004, nothing was put in my records ect
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- Looking for help in Arizona - by Erin - (Wed, Jun 04 2008)
My husband was injured at work 3 years ago - it went misdiagnosed for 6 month by the workers comp Dr and only after being granted a 2nd opinion did they find the injury.
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- RSD - by plt - (Wed, Jun 04 2008)
I’m a 47 yr old women who has RSD. Have had it since 2002, I had leg surgery. And went to have the stiches taken out and it hurt like hell. That is when the Doctor said I think you may have RSD.
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- No where to turn - by Marney - (Mon, Jun 02 2008)
My name is Marney, 31yo from NJ. One month ago I had surgery for my P.F. I had 5 days where I had NO pain. After those 5 days(about 3 weeks after surgery), my foot swelled up and now the pain is constant and unbearable.
[more..]
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