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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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rsd
by: amy
on Tue, May 13 2008
Hi my name is amy, I am a 40yr old female from pennsylvania, back in 2005, I wolk one morning unable to step down on my foot, i of course called my doctor and was sent to see a foot specialist he diagnosed me with severe planter faciatis [fasciitis], at the time or should say prior to the surgery i was a supervisor in a shipping room standing on my feet in sometimes the same place for hours, so the doctor decieded to try injections in my foot, if you ever had those they hurt extremely, well they would last for 2 days then it stopped working all together so i decieded the next best thing is to release the planter faciatis by surgery what a mistake, since then i have had so much pain my foot swells,my skin in the winter is cold to the touch like i had it in the freezer for hours turns purple and in the summer it turns beet red swelling causing pain to go up my leg to my lower buttocks, which now they say i have a pinched nerve in my lower back along with one in the middle to boot, the pain never goes away my legs fall asleep with the tingling of needles alot, i have been through numberous of tests, and to pain centers (which i feel are useless) my main doctor states even though the test do not show rsd i have every symptom of it, it has made me into a person i do not like, i am very mean when i hurt my goodness the medication i take is unbarable to my stomach which now has caused problems there, i just can’t seem to win either way i go, is there anything to ease the pain, and i would give anything just to sleep 6hrs straight without waking up do to pain.
Comment on this
Comments
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Sun, Jun 01 2008
Your best bet is to go to a pain manegment Doctor, He can diagnoise RSD. Im not doctor put it does sound like rsd I know how you feel it is very pain...Read
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Sun, Jun 01 2008
My name is Marney, 31yo from NJ. One month ago I had surgery for my P.F. I had 5 days where I had NO pain. After those 5 days(about 3 weeks after surg...Read
May 2008
- rsd - by tammy - (Thu, May 29 2008)
i am 47 and i had an accident at home and crushed my wrist. i had surgery and the dr. put a plate with 5 pins and 4 screws. after 1 month the dr. told me i have rsd and had no idea what that was.
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- Seeking answers - by DAS - (Tue, May 27 2008)
Hi, I am a 47-year-old female who had a radical mastectomy in 2004 (breast and lymph node removal) on the left side. I was warned to be careful with my left arm (not have blood pressures, needle sticks, etc.) and really had no problems until last fall (2007) when I tripped going up a few steps and banged into the door jam with my left arm.
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- BOTH OF US - by peggy - (Thu, May 22 2008)
I am a 59 year old female with MS…doctors finally told me that I also have RSD. The past 2 months my sister who had a knee replacement and couldn’t get better w/all she was suppose to do with therapy.
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- Do Things get better - by sissy - (Mon, May 19 2008)
Hi, I am a 44 y/o female. I was given the news a few months ago that I have RSD. I am a nurse and never heard of RSD until I had an injury from work.
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- RSD due to freak accident - by Heather - (Thu, May 15 2008)
Hi everyone,
I had a freak accident back in Aug 2005 that caused the RSD I suffer with now.
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- rsd - by amy - (Tue, May 13 2008)
Hi my name is amy, I am a 40yr old female from pennsylvania, back in 2005, I wolk one morning unable to step down on my foot, i of course called my doctor and was sent to see a foot specialist he diagnosed me with severe planter faciatis [fasciitis],
[more..]
- I’d do it all over again… - by JAC - (Tue, May 13 2008)
I am a 35 year old woman that used to teach children with Autism. The students at the school that I worked at had severe enough Autism that their counties couldn’t place them in public schools so they were sent to our school.
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- DOES ANY ONE HEAR ME - by AURA - (Tue, May 13 2008)
I AM A 48 YR OLD FEMALE, I HAD AN ACCIDENT 2 YRS AGO AND HAD A SMALL FRACTURE AND A SEVERE SPAIN TO MY ANKLE. I WENT THROUGH THE REGULAR RUTINE, OF A CAST AND CRUTCHES, STILL HAD PAIN
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- Who Believes - by Gordon - (Tue, May 13 2008)
I started with pain in both hands. After a year of medical testing it went to my elbows and forearms.
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- RSD - by Kathy - (Thu, May 08 2008)
I’m a 49 year old woman and I have RSD. It started with an accident in 2003 it took me about 31/2 months to walk again and still live with the pain in my left foot.
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- shock - by wendy - (Mon, May 05 2008)
my names wendy and i was diagnosed with r.s.d in january this year, having never heard of it this came as a shock and i cant beleive it is so painful and disabaling , i had surgery on my right hand and since then i have had r.s.d and can no longer use my hasnd which because i am right handed has totally ruined my life .
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