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This section is a place to share stories about Living with RSD
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Felicity
by: Felicity
on Mon, Apr 07 2008
I am a 54 year old female, investigation for RSD started in 2001 and some years later got the diagnosis. There is hope, together, sharing our stories, we can also share our strength hope & courage. I would like to start a support group in South Africa. The RSD support group is extremely helpful and also meeting wonderful people who become our family and friends. I have RSD in my left foot as a result of an injury, I am now in the 3rd stage, some Drs say there is the 4th stage as well. I have now got RSD in foot and upper leg and into the groin and am managing well, after acceptance that the person I was and the person who I am today, is a big difference, I have dealt with the issues that I had to deal with, emotionally, financially medication is expensive in South Africa, for me I highly recommend the genuine Chrocs shoes if you can afford them otherwise the normal ones you get in the supermakets.
My left leg is heavy, feels like I’m carrying my leg with me, my foot at times feels like an ice bag inside the actual foot, I chose my own socks as I cannot wear certain sock material, also I have been told to wear diabetic socks and they have helped tremendously! I wear the old socks and then put on the diabetic socks, and it does make a big difference and does help with the frozen foot, as I call it. I also have help daily as I cannot do certain things, but, I do have my own hobbies, beading, gardening, not a lot of gardening otherwise I will suffer afterwards. I have learnt not to do everything in one day, and so if I do one thing a day that I have accepted completely. For me I’m fortunate to have the help I get everyday except for week ends, and having hobbies is so important! Keeping my mind occupied and focused on other things keep my RSD bearable. Not everyday is fine, its okay for me to lie down, take medication, I know for sure that there isnt “a pill” for RSD so it is a matter of trial and error.
It is very important to have the support of family & friends, if you dont, the RSD support group will become your family and friends! I am truly blessed, for me thats extremely important, I think of those with full body RSD, wow, I thank God I have only got RSD in the left foot and leg! I am positive most days, I have a good relationship with my Dr and have learnt so much about myself and how to cope each day, one step at a time.
Comment on this
Comments
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Mon, Apr 28 2008
Good day Felicity,
Thank you for taking the time to share your story. I am fighting the same battles and have learned to take one day and task at a t...Read
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Wed, Apr 16 2008
I am 53 years old and I have had RSD for about 3 years. I had surgery on both my arms and as a result, my left arm and hand was affected with RSD. It ...Read
April 2008
- my husband has also wanted his foot removed - by BA - (Tue, Apr 29 2008)
My husband was injured on the job 5 Years ago, what started out as a broken ankle is now RSD from the waist down. His ankle did not heal and the doctor fail to notice this.
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- living with rsd - by KKR - (Tue, Apr 29 2008)
I have been living with rsd since 1995 when i had both my feet operated on for biladrial nuromas [bilateral neuromas] as soon as i woke up from the surgury i notised that my feet were cold that was very unusual for me.
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- mr - by dave - (Mon, Apr 28 2008)
4 months ago i had a cycling accident and suffered a broken hand and dislocated finger. A plaster was put on for 6 weeks together with a finger splint.
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- Don’t GIve Up - by Linda D. - (Tue, Apr 22 2008)
In May of 1991 I slipped on a wet floor and hurt my left knee. At 27 and an active mother and college student, I just figured I would be sore the next day or two.
[more..]
- What Now? - by Sherica - (Mon, Apr 21 2008)
I was in a car accident in June of last year. I now have partial seizures herniated and bulging disc in my upper and lower back.
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- My life has been severely changed. - by Michael - (Mon, Apr 21 2008)
In June 1989 I had a left knee arthroscopic surgery and was put to sleep. When I awoke I had such SEVERE BURNING PAIN in that leg that I could not lower it to the ground.
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- living with RSD and what helped me - by sbb - (Mon, Apr 21 2008)
I am a 39 year old female and work as a nurse. I was coming down steps outside my apartment when they dropped out from under me and my left foot was struck with a iron step. After multiple foot surg. I developed RSD.
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- RSD - by ANESSA - (Fri, Apr 18 2008)
HI, I AM A 37 YR OLD FEMALE, WHO WAS INJURED IN 2002, WHEN I WAS WORKING AS A VET ASSISTANT, MY BOSS AND I WERE ATTENDING TO A ILL CAT, WHO USUALLY WAS A NICE CAT BUT VERY ILL AT THE TIME, WE PUT A IV BACK INTO THE CAT, (TRIED TO) BUT INSTEAD HE HAD LATCHED ON TO MY LEFT HAND AND WRIST AND BIT ME 17 TIMES, THE DR STOPPED COUNTING.
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- I’m sorry for your pain of RSD/CRPS, lets fight this thing together!! - by kriskaleigh - (Fri, Apr 18 2008)
I was injured over 3 years ago @ work when some equipment fell on my right shoulder & hand.
I not only had the original tearing and damage within the shoulder, I immediately had edema, purple-blue skin mottling
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- Diagnosed with RSD? WHAT? - by SHARON - (Wed, Apr 16 2008)
I am a 37 year old women and life as I knew it would change….
MY STORY
FEB 2007-Well, it started back in Febuary 2007 when a car slid on ice and headed for my LandRover.
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- One of the lucky ones….so far - by Sherry - (Wed, Apr 16 2008)
I had surgery for pronator syndrome on both arms. This was almost 3 years ago. My left had kept burning, finally, reluctantly my surgeon (if you want to call him that) wrote on an appointment card “RSD early” and told me to give this to my therapist.
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- RSD - by Tamika - (Mon, Apr 14 2008)
I was told i had RSD about 3years ago. since then i’ve had injection in my neck and 5 operations.The pain from RSD is so bad.
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- RSD - by stan smith - (Mon, Apr 14 2008)
My name is Stan. I am 49 years old and was injured at work 2/9/06. My left hand & arm (shoulder) was mangled in in a magnetic drill press.
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- I DID’NT KNOW WHAT RSD WAS - by MARIA D - (Fri, Apr 11 2008)
I WAS DIAGNOSED WITH RSD 2 YEARS AGO IN MY LT LEG AND 6 MOS IN MY A RIGHT ARM THE PAIN WAS PAINFUL THE BURNING DIFFERENT COLOR OF MY SKIN CANT TOUCH MY LEG OR ARM.
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- living with rsd - by andrea - (Thu, Apr 10 2008)
hi i’m a 36year old female who has had rsd for 3 years now.i have had 2 strokes and a heart attack from this it seems hard to go on at time but i do .
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- bloody hell - by cc - (Wed, Apr 09 2008)
i’m wondering if anyone has considered, or actually decided to have their foot below he knee] removed due to rsd.
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- Darn that Manhole - by Christine - (Tue, Apr 08 2008)
On December 2, 2006, I went out with my husband and a friend of ours for my birthday. We took the trolley downtown so that we wouldn’t have to drive at all. We had such a wonderful evening out. Patrick danced (club dancing type) for the first time in 13 years. It was magical.
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- Felicity - by Felicity - (Mon, Apr 07 2008)
I am a 54 year old female, investigation for RSD started in 2001 and some years later got the diagnosis. There is hope, together, sharing our stories, we can also share our strength hope & courage.
[more..]
- RSD - by Rick - (Fri, Apr 04 2008)
My wife has always been an active person. Loves to walk and dance and garden. Five years ago she pushed a bucket of compound spackle with her foot which having her hands full.
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- New to RSD forum - by Bill - (Wed, Apr 02 2008)
Back on September 29 ‘07 I fell from a ladder and shattered my calcaneus (heel). Had surgery to repair it (titanium plate and 12 screws). The injury has since healed almost fully according to the docs and MRI’s, however my foot still swells and aches at times.
[more..]
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