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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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new to rsd
by: paula
on Thu, Mar 20 2008
Hi my name is Paula,
In november i fell and broke my left wrist. Hospital suggested i see surgeon who decided to put pins in. A few weeks later my fingers were were so swollen that one was squished down under the other 3 as there was no room for it. 4 weeks had gone by and still no change, i went to emergency room as the pain was unbearable and my fingers felt like they were on fire. i was told make an appointment with your surgeon. 5 days later surgeon says too swollen to take pins out. 2 weeks later still too swollen but he took pins out anyway and told me go to physio and when i see him in a month i will be shaking my fist at him because everything will be fine. i told him i dont think so something is very wrong. when i first went to physio one of the ladies said you need to be referred to a wrist specialist, this is the worst case of rsd i have ever seen here. (now im scared thinking what is rsd) and im not going to touch it. the other lady said wow thats interesting i can do it i will touch her. this made me feel nervous like it was a personal challenge to her or something. 3 months since starting physio and swelling is still there and i still cant bend my fingers and wrist. My shoulder is now out of use as the pain is to horrible to move it.
i am feeling depressed, cranky, confused and worried as i am a single mom who just bought a new house and cant work. (i work in an oil plant and need to pull my body weight) i cant sleep at night either. i have seen 7 different doctors and nobody seems to do anything about it. i am going to ask to be referred to a specialist as i am getting no answers here. Just more pain.
I was thinking to get a bone scan or something. i have no idea what to do as the doctors here seem to not want to deal. This is spreading into my body and i am scared.
If anyone can give me some suggestions i would greatly appreciate it.
Thank You
Paula
Comment on this
Comments
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Mon, Mar 31 2008
Paula, did your Doc rule out "compartment syndrome"? It can happen after surgery, where excess fluid moves into the 'incised' (or, cut-on) ...Read
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Sun, Mar 23 2008
Paula--your story is similar to mine. My Dr. put me on Lyrica. It is helping me to sleep and I believe to make strides in therapy....Read
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Fri, Mar 21 2008
thank you so much for your advice. nobody seems to know what to tell me and i havent told my family or boyfriend how serious it really is because doct...Read
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Thu, Mar 20 2008
Hi, my name is Venus and I wanted to say sorry for what you've been going through. I alsso have RSD since 2001 now, and it took 13 doctors (primary p...Read
March 2008
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- new to rsd - by paula - (Thu, Mar 20 2008)
Hi my name is Paula,
In november i fell and broke my left wrist. Hospital suggested i see surgeon who decided to put pins in. A few weeks later my fingers were were so swollen that one was squished down under the other 3 as there was no room for it.
[more..]
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- Raising Public Awareness to RSD - by G0J0G0 - (Wed, Mar 05 2008)
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