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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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I want my life back
by: Beverly
on Fri, Mar 14 2008
i fell and hurt my shoulder.
i ripped the muscle in my rotator cuff.
they went in to repair it that was january 18 th 2007. for nine months of
instense pain, swelling , and hot spots in my left arm , hand and shoulder. no one knew what was wrong with me! then finally one doctor said you must have rsd i have had pain blockers and i’m on all kinds of meds. and the pain is still there some days better than others but , its my left arm, andi’m left handed ! I have never heard of this disease before. now i know i’m not the only one out there with this . and its also workers comp. which is so slow for everything.its just nice to write about it ,to someone else who knows what i’m talking about. thanks and best wishes to all who have this .
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Comments
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Thu, Mar 27 2008
On Jan 8, 2008 I slipped on the ice and landed on my left knee and knew immediately I had hurt myself badly. A trip to the hospital with x-rays showed...Read
March 2008
- i dislocated my right shoulder - by Jennifer - (Mon, Mar 24 2008)
on 12/23/07 i dislocated my right shoulder and after it put back in place and the pain meds wore off i realized i had no feeling in right shoulder or arm to my elbo. in feb 08 i was diagnosed with rsd
[more..]
- new to rsd - by paula - (Thu, Mar 20 2008)
Hi my name is Paula,
In november i fell and broke my left wrist. Hospital suggested i see surgeon who decided to put pins in. A few weeks later my fingers were were so swollen that one was squished down under the other 3 as there was no room for it.
[more..]
- RSD Question - by Rachel - (Mon, Mar 17 2008)
On Nov 8th 2007,I fell and broke my 5th metatarsal.
The usual treatment, boot and crutches. However around Christmas time I felt a new and very different pain.
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- I want my life back - by Beverly - (Fri, Mar 14 2008)
i fell and hurt my shoulder.
i ripped the muscle in my rotator cuff.
they went in to repair it that was january 18 th 2007.
[more..]
- Fear of the Unknown - by Jana - (Mon, Mar 10 2008)
My husband was injured at work December 19, 2007. That was the day that changed our lives forever. Since that day I have seen my husband go from a cane to a walker with wheels and now a wheelchair.
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- DISCRIMINATORY PAIN MANAGMENT - by Sabrina - (Fri, Mar 07 2008)
I have had CRPS for 20yrs/5mths/8days. I spent 17 of those years undiagnosed. An ankle injury/lymph node removal is responsible for my CRPS. Since diagnosis in 2004, it has been a true struggle to find the right care.
[more..]
- Raising Public Awareness to RSD - by G0J0G0 - (Wed, Mar 05 2008)
I am writing to create an area for people affected by RSD to refer public officials or people that could be beneficial in helping to raise public awareness of this relentless disease to.
For anyone that is unaware of RSD also known as CRPS, and it’s toll it wages on the patients and their loved ones, please read some of the posts that have been entered on this great forum.
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- Letter to Workman’s Compensattion - by Patricia - (Wed, Mar 05 2008)
Dear Ms B.,
I had the accident resulting in Reflex Sympathetic Dystrophy on my left side September 1, 2003. This event of course changed my life, my abilities both personal and employable. For your information with reflex sympathetic dystrophy sometimes means people commit suicide.
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- To Long To a Diagnosis - by Amy - (Wed, Mar 05 2008)
On December 22, 2004 I fell on the ice. My left arm was carrying my briefcase. Somehow during the fall the briefcase ended up under my head. I immediately had swelling and intense pain in my wrist.
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- What is it? 12-15 years old. - by Courtney - (Wed, Mar 05 2008)
When i was twelve years old, i was sitting in the sixth grade and my toes started to tingle. i figured they were just falling asleep, so i tried to shake it off. later that day i realized that it was still there, in not only my toes, but my entire right leg!
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- living with rsd - by diana - (Mon, Mar 03 2008)
i was hit by a tractor trailer and a van the the trailer then crushed under a box truck .i knew something was wrong with my left leg i saw many doctors .it was a year later still complaing about the pain they told me i had rsd it has not be easy and i have 4 kids
[more..]
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