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This section is a place to share stories about Living with RSD
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I have RSD
by: Linda
on Mon, Jan 28 2008
I was diagnosed almost 2 years ago with RSD in my left Shoulder due to an injury at work and also a shoulder surgery. Because this is a workers comp case I have been thru the mill. My latest experiance is awful I was sent to a pain clinic where they have attempeted to put me through this 8 week program to help mangage my pain with exercise and meditation and art therapy not telling me when I went in that the other plan was to take me off of my pain medication. The Doctor promising the insurance company that in eight weeks I will be off of the opoids and more functional the bad thing for me is he did not tell me that was part of the plan.
I have a type A personality it is almost impossible for me to meditate I have also started having problems with the right shoulder he said it is Bicep Tendinitis and Bursitis My case is very complicated when I had the surgery it was to clean out the shoulder because they said I had a frozen shoulder I was sent for an MRI one year after surgery and the radialogist report said there was evidence of a rotator cuff repair there were two metal surgical clips in there the surgeon says he didnt put any clips in there. HMMM I wonder what happened anyway I ended up going to Bay Area Pain Managment this is the place that I mention that has me in this program I a have really struggled there because of there approach.
I talked to the Dr on Thursday he said I was not participating as I should I told him that I was having a hard time and still concerned about the MRI and wondering if there was somthing in my shoulder that should not be there he said I needed to go home and make a decision about if I wanted to be there or not because he did not have time for me to be dicken around with this. ( Excact words) This clinic will make 30,000 dollors for me going through it for 8 weeks they told the insurance company it would be more cost effective for them because they wont have to pay for my pain meds anymore.
I am so upset I have been working like this for the past year as a phlebotomist I had a nerve block in November 07 that sent everything into a sprial it feels now as if my arm has been burned most of the time I cant let clothes or blankets even touch it. The Dr basically has said if I dont decide to finish this program he will send me back to work. I feel like I am being pushed around by him. Am I doing something wrong does anybody beleive that you can meditate this awful burning aching pain away! I am so scared to see him on thursday
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January 2008
- nightmare of RSD - by ROSIE - (Thu, Jan 31 2008)
GOD bless y all that have this.Ive had RSD for 10 years, i got it after a foot operation, it got so bad nothing could touch my rt foot,the burning was intense and the hot needles,they tryed nerve blocks in my spine, did ok for the 1st 2, then they hit a nerve in my rt side and then nothing could touch that area either.
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- Onset of RSD - by Rebecca - (Tue, Jan 29 2008)
Unlike many here, my RSD didn’t occur until recently. My story is long, but I will try to make it as short as I can.
In August, I went to my PCP as I had a pain in my heel, but could not find anything wrong that would cause pain. I basically went because I am flat footed and have diabetes.
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- Why does my Orthopedic Surgeon fail to help me with my RSD Disease , since it started after the first out of 6 surgeries that he performed? - by Anna Marie - (Mon, Jan 28 2008)
My RSD started in 2002 after I had an accident involving my right knee at work. I have been through 6 knee surgeries by the same M.D. I am now in the 3rd. stage-Atrophic.
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- dealing with rsd - by DEBBIE - (Mon, Jan 28 2008)
I WAS AT A COMPANY CHRISTMAS PARTY IN 2003 WHEN I KICKED A CHAIR GOING UP TO DANCE. I WALKED ON MY FOOT FOR A WEEK AND WENT TO THE DOCTOR.
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- New to RSD - by deb - (Mon, Jan 28 2008)
Left foot surgery in July of ‘08, diagnosed with RSD in Sep. Began 30 days of steroids, then neurontin. The nerve conduction study shows poly neuropathy (both legs), and now on Cymbalta and Neurontin for nerve pain.
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- I have RSD - by Linda - (Mon, Jan 28 2008)
I was diagnosed almost 2 years ago with RSD in my left Shoulder due to an injury at work and also a shoulder surgery. Because this is a workers comp case I have been thru the mill.
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- My reign with RSD - by hg - (Mon, Jan 28 2008)
I’m 31 years old/female. 2 1/2 yrs ago I developed RSD after the back of my feet and went up the back of my legs (achilles tendon) got stuck under an MRi machine.
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- hoping to deal with RSD - by keli - (Tue, Jan 22 2008)
In oct/9/06 I was a back seat passenger in a taxi cab, the driver went to change to the right lane and he was not paying attention,( he was driving with a broken arm and talking on the cell phone with the other) so after his lane change we hit a car as traffic was stopped, I flew out of my seat and hit my shoulder on the passenger back seat
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- Living with RSD - by TW - (Tue, Jan 15 2008)
Five years ago I fell and twisted my foot in Karate class and it hurt a little bit. I walked on it for three months and it finally got so bad I couldn’t stand it, I had a fracture which put me in a cast for 8 weeks and I was in amazing pain I hadn’t felt before.
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- Chronic Pain RSD Neuropathy - by RS - (Mon, Jan 14 2008)
I am 55. At age 20 I was involved in a serious industrial accident, partially severing my right arm and damaging my right iliac crest.
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- PAIN IN THE ARM - by PAM - (Mon, Jan 14 2008)
IN AUG 07 I WAS GIVEN A CORTIZONE SHOT FOR ELBOW JOINT PAIN, I WAS FEELING GREAT UNTIL ABOUT OCTOBER WHEN SLIGHT PAINS STARTED AGAIN. IT QUICKLY PROGRESSED TO BURNING IN FOREARM AND BACK OF UPPER ARM
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- New friend - by Jessika - (Tue, Jan 08 2008)
I just met this young girl whose turning 21 and suffers from RSD. My heart aches for her, who is an angel and the sweetest things but has so much pain.
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- living everyday in severe pain - by Lorie - (Tue, Jan 08 2008)
i had a spinalfusion on L4,L5,S1 almost 1 year ago this month. every since surgery i have severe pain in lower back and i have’nt regained all my feeling from knee down in my left leg into my left foot.
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- RSD - by Shirley - (Mon, Jan 07 2008)
About 6 yrs ago I had left foot surgery for 2 noromas [neuroma] tumors in the top of my foot and heal spur,Well 5 yrs ago I was getting pains really bad in the same foot and it turned out I had tarpel [tarsal] tunnel
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- 4 years of a nightmare - by dtrjp - (Wed, Jan 02 2008)
my son was just turning 3 when i fell 9 to 10 fell out of a garage attic to a cement floor and broke my heal bone. i was doing ok basic break just need a good dr so i went to a detroit hospital for help.
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