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Living with RSD

This section is a place to share stories about Living with RSD

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My story


by: Shala on Tue, Nov 13 2007

Seven years ago i was diagnosed with a very rare type of a rare blood disorder called TTP. During that time i had 2 what i call strokes. They said they were TIA’s but to this day still cant grip with right hand..it was a stroke

I also had to have plasmapharesis to take the bad red blood cells out of my body, this went on for 9 days. When I was on the machine i had to be given calcium by injection. One day they decided they were just gonna try giving me Tums and no injection since i was holding up so well, it didnt work, i crashed.

That was the day i got RSD and i have been begging for help since 2001. People thought i was depressed, im not depressed i am sick, and in the most horrible pain in my whole body that you could possibly imagine. And I am lucky because i live close to the doctor who specializes in it….but, I can not see this man for a whole year.. u heard right, a whole year. I could be dead by then.

I hope i live long enough for them to tell me i wasnt crazy and that what i have really is a disease.. I feel bad for anyone who has even the smallest amount of RSD I have it systemically now and i think about how am i spose to live my life like this….i really do need help. As i am sure all of us do.

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November 2007

  • Do I have RSD - by Brad - (Thu, Nov 29 2007)
    3 years ago I injured my hamstring. Since then I have suffered from pain in my lower hamstring area, buttock and lower back. Also during this time I have experienced a drastic change in bowel movement and pain during sexual intercourse. In addition [more..]
  • RSD secondary to car accident - by carol - (Fri, Nov 16 2007)
    I had a car accident in May of 2005. I was in the passenger seat of our car when we were T-boned by a car going 55 MPH. I received inuries in that accident. I had 5 non displaced fractures to my pelvis. No surgery or traction was required. [more..]
  • My story - by Shala - (Tue, Nov 13 2007)
    Seven years ago i was diagnosed with a very rare type of a rare blood disorder called TTP. During that time i had 2 what i call strokes. They said they were TIA’s but to this day still cant grip with right hand..it was a stroke [more..]
  • My life has taken a complete 360 degree turn - by glori - (Fri, Nov 09 2007)
    A year in a half ago i was out with the girls when i fell in a drain hole covered up by a rug and broke my ankle.. Six weeks after my first surgery i attempted to go back to work.I work as a cna, as you know that is hard work anyways, ever step i took i had popping [more..]
  • The Last Dance - by Toni - (Mon, Nov 05 2007)
    Dancing at my son’s wedding I stumbled, fell and suffered a colis fracture. Almost six weeks in a cast at which time I visited doctors twice about the discolouration and swelling of my fingers and the lump on my elbow. I was told this was usual because I had suffered a bad break. [more..]
  • RSD 17 years 75% relief in 2 Weeks with Watercure - by Donna - (Fri, Nov 02 2007)
    My name is Donna. I am a 50yr. old LPN disabled with RSD since 1990.I was a victim of hospital errors/substandard care 12 days in a Scranton,Pa hospital 5/2005. [more..]
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