Living with RSDThis section is a place to share stories about Living with RSD Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download RSD/CRPS Type 2 On 4/4/06 I fell at work and fractured both feet and my left ankle. I went through physical therapy and bi-weekly appointments with my orthopedic doctor. We were trying everything we could to avoid surgery on my ankle. My orthopedic doctor finally said in July 06 that we were not getting anywhere with pain etc. he suggested surgery on my left foot/ankle. On 8/30/06 I had surgery on my foot/ankle they reattached a ligament and tendons and also placed 3 screws in my heel. I ended up with an infection in my foot, so that postponed my treatment. After the infection went away I was placed in a cast and it was non-weight bearing for 6 weeks. I tried to go back to work, but the 1st day back, my leg swelled up and over my cast, so I was taken back off of work. I was still in such great pain after my cast was removed and going through physical therapy both my regular doctor and orthopedic doctor wanted to send me to a specialist, and that was the first time I heard RSD/CRPS. I saw the specialist who happened to teach all about RSD to the college students etc. He took a look at my foot and did a little testing and sent me back to my doctor with a diagnosis of RSD/CRPS type 2. They decided to treat me aggressively, and they started with nerve blocks that did not help. Shortly after that, my employer fired me for being out too long on workman’s compensation. So I decided to move back with my family for assistance with my illness. We transfered my case to a different doctor and got started all over. I went through 5 nerve blocks that did not work. Now we are trying different medication and physical therapy to try and get my pain under control. Not only am I in unbearable pain, sometimes I cannot stand up on my own, and my entire body twitches all the time. Sometimes they are so bad it makes my fall down. My RSD has now traveled to my right foot and they have both doubled in size. I had to have them elevated for a few days to get the swelling to come down. I cannot wear shoes because I can’t stand the pressure on my feet. Well it is now 7/07 and this is where I am with the lovely illness of RSD/CRPS. All I can say is don’t give up, continue to get up and move when you can. Have a good relationship with your doctors and let them know what works and what doesn’t, they can’t help you if they don’t know. Comments
August 2007
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