Living with RSDThis section is a place to share stories about Living with RSD Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download HOW MY LIFE HAS CHANGED NOW THAT I HAVE R.S.D. 
I SLIPPED AND FELL ON CLEAR BLACK ICE ON MY WAY TO WORK THAT COLD DECEMBER MORNING. MY CAR PORT IS ON A SLANT SO I GAVE IT A LITTLE EXTRA PUSH AS I SHUT THE DOOR AND THAT’S WHEN I FELL AND BROKE MY ANKLE. I SCREAMED FOR HELP, BUT NO ONE HEARD ME, THEN I PRESS MY CAR ALARM, STILL NO ONE HEARD ME, THEN I REALIZED THAT I HAD MY CELL PHONE IN MY POCKET. I CALL 911, I WAS FREEZING TO, THANK GOD I LISTENED TO MY MOTHER, EVEN THOUGH I HAVE 3 GROWN CHILDREN OF MY OWN. IF I HAD NOT HAD MY CELL PHONE I WOULD HAVE FROZE TO DEATH. I COULD NOT MOVE, I WAS IN SO MUCH PAIN, I LOOKED AT MY ANKLE AND COULD SEE IT WAS TURNED BACKWARDS I KNEW I HAD BROKE IT. THE EMS CAME, EVEN THEY WERE SLIPPING ON THE ICE, THEY TOOK ME TO A LOCAL HOSPITAL. MY ANKLE WAS PUT BACK INTO PLACE BY A DR, I KNOW THAT WAS THE MOST PAINFUL EXPERIENCE IN MY LIFE. THE NURSES THERE WEREN’T, I FEEL DECIATED TO THEIR PROFESSION, I THINK THEY FELT IT WAS JUST A JOB. I WAS EVEN CALLED A DRUG SEEKER. I STAYED FOR ABOUT 24 HRS, THEN WENT HOME, I CALLED MY FAMILY DR. AND HE REFERRED ME TO A ORTHOPEDIC DR. I HAD SURGERY TO REPAIR MY ANKLE, I THOUGHT I WOULD BE OFF WORK FOR ABOUT 6-8 WEEKS, IT’S BEEN 19 MONTHS!!!!! I WAS DIAGNOISED [diagnosed] WITH R.S.D. 5 MONTHS AFTER BREAKING MY ANKLE. LIVING EVERY DAY IN PAIN IS A STRUGGLE, BUT ONLY THE STRONG SURVIVE……. I’M NOW LIVING WITH MY AUNT, MY HOME IS IN FORECLOSURE, MY HEALTH INSURANCE HAS BEEN TERMINATED, NO MONEY, SPENT MY RETIREMENT MONEY SO I COULD LIVE FOR THE LAST 19 MONTHS. TRYING TO GET ASSISTANCE FROM THE STATE, BUT THERE’S A WAITING PROCESS IN THE MEAN TIME I HAVE PRESCRIPTIONS THAT NEED TO BE FILLED, AND MEDICAL CARE IS NEEDED, AND I HAVE GAINED 85 LBS. I HAD NEVER HEARD OF R.S.D. UNTIL I WAS DIAGNOISED. SO MANY HAVE NEVER HEARD OF R.S.D WHEN THEY ASK ME WHAT IS WRONG WITH ME, THEY LOOK AT ME LIKE I’M CRAZY, I TELL THEM TO LOOK UP R.S.D. ON THEIR COMPUTER AND READ ABOUT IT. I HAD A CAREER WITH THE GOVERMENT FOR 20 YRS, I’M NOT ABLE TO WORK, I APPLIED FOR STATE ASSISTANCE, BUT THEIR IS A WAITING PERIOD. I ALSO APPLIED FOR S.S.D. BUT WAS DENIED, BECAUSE OF NOT ENOUGH MEDICAL EVIDENCE. I RE-APPLIED AND HAVE AN ATTORNEY THIS TIME. I KNOW NOW THAT I’M NOT ALONE WITH R.S.D. I HOPE AND PRAY, THAT WE SPREAD THE WORD ABOUT R.S.D AND PEOPLE WILL RECONIZE R.S.D. JUST AS THEY RECONIZE OTHER MEDICAL CONDITIONS, LIKE MS MD, AND MANY OTHER HEALTH ISSUES.
August 2007
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