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Living with RSD

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RSD - What Works for Me


by: Gin on Mon, Jul 02 2007

I am a 30 year old female who developed RSD after a fall at work. I was working as a CNA and slipped in urine and sprained my ankle. After about three months of pain, missery, and questioning my problem I heard……we think you have RSD.

After that my doctor washed his hands of me. I was sent to a moody, needle freak, cut happy Pain Managment “specailist”…….what a joke. I bone scan showed positive signs of RSD and confirmed what the doctors had assumed. So I tried the lumbar sympathetic nerve block. After four I had had enough! I had various reactions from them from not be able to feel my leg to my vitals all dropping drastically. I wasn’t warned of these side effects and when I asked my doctor he shrugged me off. He refused to discuss my illness with me or discuss treatment options. All he would discuss was the spinal cord stimulator. That I had no options. He refused to even discuss problems I was having with my oral medications.

Thankfully I had a good Primary doctor. I could talk to him. We discussed options that I had learned about. His motto was try it. If it helps keep doing it! He sent me to another pain clinic and prescribed a tens unit for me. With the help of herbal suppliments, parifin dips and the tens unit I have had some relief. I still suffer from RSD…..I have bad days, but I also have days that I can actually stand myself. For me this has been a humbling and difficult experince.

It’s hard when people ask you about RSD. What can you say when doctors cannot give you an answer. My advice to people who have RSD…..research everything you can. Try everything you can…even when people around you think your crazy. You’re not!!!! It’s a long road but it doesn’t have to be lonely. I personally use MSM, Chromium, Glucosamin, chrondrotin, valerian root, parafin dips, heat, and a tens unit. Try a tens unit before you agree to have an inplant. Try everything you can before you let someone cut you and possibly cause you more problems.

If your doctor doesn’t listen and you’re not happy….get rid of him/her and find someone who will. And pray to God for guidance and help. I pray for a cure or maybe some day I’ll be one of the lucky ones and it will disappear as quickly as it showed it’s ugly face.

Comment on this

Comments
  1. Wed, Sep 19 2007
    Hi i am suffering with the same problem.I fell when i was hill walking sprained my ankle and it went on from there. I have been on crutches for two an...Read

July 2007

  • 11 year old daughter - by debbie o - (Sat, Jul 28 2007)
    My daughter was diagnosed with RSD, after several months of being told it was “all in her head”. Thank goodness her first specialist sent her directly to physical therapy It was after xrays, MRI and EMG that we realized it was not broken, but that her hand had closed and would not reopen. Any touch would send her into a deep state of tears and severe pain. [more..]
  • finally diagnosed - by DB - (Thu, Jul 26 2007)
    in March 2007 I fell at work and broke my foot I am an active 35 yr old and what a challenge this has been. Its been 5 months now and I am just beginning to take some steps without using crutches. [more..]
  • where am i - by Mary - (Thu, Jul 26 2007)
    two and a half years after being diagnosed with RSD, friends, family, and assosiates are gone because of my emotional upheavel. where am i? where do i go? what do i do? i want to be myself again. [more..]
  • RSD sufferers please TRY HYPERBARIC OXYGEN TREATMENTS! - by LIANNA - (Wed, Jul 25 2007)
    I already wrote my story earlier but I felt that I left some very important issues out and that is what you are all feeling which is unbearable pain and suffering. I was so bad that I could not even put my foot down or bend my knee to get up to go anywhere. [more..]
  • Just found out about RSD - by DW - (Wed, Jul 25 2007)
    It all started when I work on the ramp as a fueler, that’s right fueling jumbo jets of major air lines. Well I was standing plane side talking to ramp agent, when another ramp agent came driving up from behind me so close that there was not enough time for the person I was talking to warn me. Before I knew it I felt my pants tug and turn to see this ramp agent smiling while he was on top of my foot. He drove over the back of my achilles and ankle trapping me under the tug vehicle. [more..]
  • RSD carpal tunnel? - by Susan - (Wed, Jul 25 2007)
    Well back in 1998 i had carpal tunnel surgery (open). I had relief for a few years and slowly started getting that feeling back again. Dropping things, pain in shoulder/elbow etc. Always feeling i had to cradle my arm. My job of 14 yrs. is a phlebotomist. [more..]
  • Living with RSD for 13 years - by Marie - (Tue, Jul 24 2007)
    I am a 30 year old stay at home mom struggling with RSD, fibromyalgia, and depression everyday of my life. I have constant pain. I have tried all oral meds the Dr.s could think of but my stomach can’t handle them. I have had well over 30 spinal blocks, 1 stellate ganglion block and have had 2 radio frequency ablations. [more..]
  • Re-occurring RSD - by JulieAnn - (Fri, Jul 13 2007)
    I am a 55 year old RN who has had re-occurring RSD since 1993. It started with a left ankle sprain in 1990, which continued to resprain at least 3 times a year. [more..]
  • RSD - What Works for Me - by Gin - (Mon, Jul 02 2007)
    I am a 30 year old female who developed RSD after a fall at work. I was working as a CNA and slipped in urine and sprained my ankle. After about three months of pain, missery, and questioning my problem I heard……we think you have RSD. [more..]
  • Right Foot pain, redness, swelling - by jep - (Mon, Jul 02 2007)
    Hi, I need to know what WORKS - so Please post successful therapy (meds, PT, etc) stories here. For four months I have had right foot pain, redness, and swelling. My doc thought it was neuroma Foot doc said it was RSD. [more..]
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