Living with Normal Pressure Hydrocephalus

My mother died on 5/21/05 and two days before her demise I discovered from a neurologist that she had chronic Normal Pressure Hydrocephalus. Prior to her demise I took care of mother’s needs for 17 years out of the approximate 20 years she suffered. I observed a progressive decline of functional ability.

The last 8 to 9 years of mother’s life she could not talk, walk, situp, roll over, move or use her arms or hands and had a peg tube for feeding. She was completely dependent and was never diagnosised. What I have seen would take a book to tell it all. If we had known about this condition the quality of her life could have been preserved. The information about this condition needs to become known. I do not want to see anyone else suffer as my mother did for an approximate 20 years. Her symptoms started around the year of 1985 when she was 55 years old.