Living with Normal Pressure HydrocephalusThis section is a place to share stories about Living with Normal Pressure Hydrocephalus. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download I have experienced the worst of NPH 
My mother died on 5/21/05 and two days before her demise I discovered from a neurologist that she had chronic Normal Pressure Hydrocephalus. Prior to her demise I took care of mother’s needs for 17 years out of the approximate 20 years she suffered. I observed a progressive decline of functional ability. The last 8 to 9 years of mother’s life she could not talk, walk, situp, roll over, move or use her arms or hands and had a peg tube for feeding. She was completely dependent and was never diagnosised. What I have seen would take a book to tell it all. If we had known about this condition the quality of her life could have been preserved. The information about this condition needs to become known. I do not want to see anyone else suffer as my mother did for an approximate 20 years. Her symptoms started around the year of 1985 when she was 55 years old.
March 2009
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