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Living with Neuropathy

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How long can one go without sleep?
by: Karen on Mon, Apr 07 2008
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I went to my podiatrist 4 years ago and asked that he not think me crazy when I said that my toes were numb but they hurt so badly at night that I couldn’t sleep. He immediately looked at me and said, “You have neuropathy.” In the intervening time I have tried neurontin, lyrica, and cymbalta (thought I was loosing my mind) and am now on neurontin, 2100 mg per day. My podiatrist has referred me to a really great neurologist. Evidently, I have idiopathic peripheral neuropathy

I am not diabetic, have sustained no injuries to my feet, and have not “done” drugs in my lifetime. I do have a low B-12 count, but not terribly low and am currently taking a supplement to take care of that problem, but no effect on my neuropathy I have been teaching for 35years (maybe tile over concrete floors is at fault???) and worry that I just might not make it through the next four years to retirement. Perhaps the most worrisome thing would be the “bad” nights when I get little or no sleep and still must function and work with teenagers the next day — sometimes with only 3 hours of sleep. I wish that I could figure out what I am doing during the day to cause such a reaction at night. The doctors say, “nothing” but… Sigh.
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  1. Sun, May 04 2008
    Karen, your story was so helpful to me. I just wandered in here trying to find my neurologist who has recently moved. He has been seeing me for a seiz...Read
  2. Thu, Apr 10 2008
    karen I was diagnosed with a monoclonal gamopathy of unknown significance in August of 2007 this came about as a result of trying to find the cause of...Read

April 2008

  • Skin Burning Pain - by TZ - (Tue, Apr 29 2008)
    I have been experiencing skin burning pain all over different parts of my body for over 2 years. My skin feels like I have a sun burn on it. [more..]
  • Hot Flashes - by Jean - (Tue, Apr 29 2008)
    Hello, I’m new here and wanted to share. After almost 4 years on Cymbalta, plus taking 7 other medications. Anyway, I stopped Cymbalta because of the price. [more..]
  • Me too for 6 months…you are not alone. - by Tasha - (Fri, Apr 25 2008)
    My problem started about 6 months ago when I woke up in the middle of the night and felt like the left side of my lower body was completely numb. [more..]
  • Neuropathy systems - by L. G. - (Wed, Apr 23 2008)
    I recently started to experience numbness of my entire face. I attributed this to a new moisturizer I had been using, so I stopped. [more..]
  • just diagnosed - by Janice - (Fri, Apr 18 2008)
    I love pedicures, but gradually, the leg massage given during this procedure really hurt. Next came the painful feeling on the front of my legs when I dried off with a soft towel after a shower. [more..]
  • LIVING WITH NEUROPATHY - by CAWTHONA - (Thu, Apr 17 2008)
    Hello!! I am a 24 yr. old female living with neuropathy. This illness has changed my life. I have been going to my neurologist for the past 2 yrs. and my case still has him puzzled. [more..]
  • What a Real Pain - by Thomas - (Wed, Apr 16 2008)
    I was diagnosed with neuropathy in April of 2007 and carpal tunnel syndrome. Trying to find a physician with this knowledge is like trying to find a needle in a hay stack. [more..]
  • “VIBRATING” WHILE EATING - by Ward - (Mon, Apr 14 2008)
    While I have some tingling all over most of the time, it increases a lot while I am eating. Doesn’t seem to matter WHAT I eat, it hits me. [more..]
  • How long can one go without sleep? - by Karen - (Mon, Apr 07 2008)
    I went to my podiatrist 4 years ago and asked that he not think me crazy when I said that my toes were numb but they hurt so badly at night that I couldn’t sleep. He immediately looked at me and said, “You have neuropathy.” [more..]
  • neuropathy post stemcell transplant - by Vanessa - (Fri, Apr 04 2008)
    I am 26, and have hodgkins lymphoma. i was diagnosed in 2006. i have been through three types of chemo 1 month of radiation and most recently a stem cell transplant. [more..]

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