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neuropathy post stemcell transplant
by: Vanessa on Fri, Apr 04 2008
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I am 26, and have hodgkins lymphoma. i was diagnosed in 2006. i have been through three types of chemo 1 month of radiation and most recently a stem cell transplant. i statred having the pains in both my hands and feet while i was in the hospital for my transplant. i would be hard to walk on my feet and my hands had limited movement. i felt like such an old lady. my doctors put me on neurotin, but it never seemed to help. they just said that the damage is because of the harsh chemo and the nerves could never recover, and become permanent.

Its been 3 months since then, I have seen a neurologist and they said the same thing. I have also stopped taking the neurotin medication, though they said to increase the dosages. I just feel like I should try to go the holistic route. My body is trying to detox the two years of Pharm Chemo/radiation. Now that I have changed my diet and gone more holistic in reference to my treatment of neuropathy I still have speratic pain, but things are better. Its not completel;y gone, but at least I can sleep at night, and be mobile. I also pray alot, mayb that is helping too. to others, I would say go to conventional medicine and at least hear what they have to say, but ultimately it is your body. You can be in charge!!! Blessings to you all.
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  1. Sat, Apr 19 2008
    I do not have any clue what you are going, through other than I have neuropathy which has caused me a lot of discomfort. I just want to say may god bl...Read

April 2008

  • Skin Burning Pain - by TZ - (Tue, Apr 29 2008)
    I have been experiencing skin burning pain all over different parts of my body for over 2 years. My skin feels like I have a sun burn on it. [more..]
  • Hot Flashes - by Jean - (Tue, Apr 29 2008)
    Hello, I’m new here and wanted to share. After almost 4 years on Cymbalta, plus taking 7 other medications. Anyway, I stopped Cymbalta because of the price. [more..]
  • Me too for 6 months…you are not alone. - by Tasha - (Fri, Apr 25 2008)
    My problem started about 6 months ago when I woke up in the middle of the night and felt like the left side of my lower body was completely numb. [more..]
  • Neuropathy systems - by L. G. - (Wed, Apr 23 2008)
    I recently started to experience numbness of my entire face. I attributed this to a new moisturizer I had been using, so I stopped. [more..]
  • just diagnosed - by Janice - (Fri, Apr 18 2008)
    I love pedicures, but gradually, the leg massage given during this procedure really hurt. Next came the painful feeling on the front of my legs when I dried off with a soft towel after a shower. [more..]
  • LIVING WITH NEUROPATHY - by CAWTHONA - (Thu, Apr 17 2008)
    Hello!! I am a 24 yr. old female living with neuropathy. This illness has changed my life. I have been going to my neurologist for the past 2 yrs. and my case still has him puzzled. [more..]
  • What a Real Pain - by Thomas - (Wed, Apr 16 2008)
    I was diagnosed with neuropathy in April of 2007 and carpal tunnel syndrome. Trying to find a physician with this knowledge is like trying to find a needle in a hay stack. [more..]
  • “VIBRATING” WHILE EATING - by Ward - (Mon, Apr 14 2008)
    While I have some tingling all over most of the time, it increases a lot while I am eating. Doesn’t seem to matter WHAT I eat, it hits me. [more..]
  • How long can one go without sleep? - by Karen - (Mon, Apr 07 2008)
    I went to my podiatrist 4 years ago and asked that he not think me crazy when I said that my toes were numb but they hurt so badly at night that I couldn’t sleep. He immediately looked at me and said, “You have neuropathy.” [more..]
  • neuropathy post stemcell transplant - by Vanessa - (Fri, Apr 04 2008)
    I am 26, and have hodgkins lymphoma. i was diagnosed in 2006. i have been through three types of chemo 1 month of radiation and most recently a stem cell transplant. [more..]

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