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Living with Neuropathy

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When will someone actually listen??


by: Kristi Reckenwald on Mon, Mar 31 2008

My name is Kristi and im 28 years old. Almost 1 1/2 years ago i was found passed out in the bathroom at my daughters school. I had been having the worst pain in my left side mainly in my arm and foot for about 3 weeks prior, i was to the point i wish i could have pulled it out of the socket. I was taken to the hospital and the nurses and dr’s didnt understand why i passed out besides being in pain. The I.V was put in my left arm and i went off the wall and needed it out so fast. I felt like i was giving birth it was so bad.

I was finally diagnosed with nueropathy and also they found a mass on my brachiel plexus which is your nerve bundle. Of course i have been medicated and as we all know it only helps at times. The nights are the worst for me and people just dont understand that even if they brush up against you it hurts. My primary dr just keeps passing the buck and to me she believes its all in my head. WELL the medical reports prove there is something wrong and still no help. I am so can we say down for the count at times that my life is overcome will this illness. It is so nice to hear that im not the only one with this, I was actually wondering of it was all in my head. Does anyone know if you are able to get any disability for this? I have been told that stressing intensifies the pain so any information would help me. Good luck to everyone and i pray that someday there will be SOMETHING that will “fix” us.

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Comments
  1. Mon, Mar 31 2008
    I think that is the answer all of us want answered. My question is how did I get neuropathy when I don't fall under the major criteria. I am on a se...Read

March 2008

  • When will someone actually listen?? - by Kristi Reckenwald - (Mon, Mar 31 2008)
    My name is Kristi and im 28 years old. Almost 1 1/2 years ago i was found passed out in the bathroom at my daughters school. I had been having the worst pain in my left side mainly in my arm and foot for about 3 weeks prior, i was to the point i wish i could have pulled it out of the socket. [more..]
  • 25 neuropathy taking charge over my life - by Tonya - (Tue, Mar 25 2008)
    Hi Im Tonya and this is my story, I first began showing signs of Neuropathy at age 22 in 2005 My feet used to swell and my legs used to be sooo hot they could cook eggs. [more..]
  • Neuropathy 8 years later - by Robert - (Tue, Mar 25 2008)
    My name is Robert and now at 29 yrs old, I am still at square one with treatment. I have been on neurotin and elivil with no success. [more..]
  • NEUROPATHY FROM ANTIBIOTICS - by Ward - (Mon, Mar 24 2008)
    I developed my neuropathy after being on Fluoroquinolone antibiotics (Levaquin, Tequin) for several years. Started just in my feet & was diagnosed as “small fiber neuropathy”. [more..]
  • 8 years later and still no answer - by Robert - (Mon, Mar 24 2008)
    My name is Robert and I was diagnosed with bilateral ulnar nerve neuropathy back in 2000 while I was on active duty. I spent most of my time recovering from surgery and theorpy. [more..]
  • pure agony - by suzanne - (Wed, Mar 19 2008)
    not only i ended up with neuropathy from chemo meds but i was also unfortunate to end up with nerve damage from a tumor on the thoracic spine (with radiation followed by surgery). [more..]
  • It comes with the territory. - by Beto - (Thu, Mar 13 2008)
    In September of 1970 I returned to eastern TN from two years service in the US Navy’s Brown water fleet. The rockets, rpg’s, mines and assorted small arms fire were clear signals attesting to fact that our LST (tank landing ship) was not acceptable to our welcoming committee. [more..]
  • Neuropathy? or what? - by Cindy - (Thu, Mar 13 2008)
    Hi I’m 37, and I’ve been suffering for a long time. Last summer it got much worse. I got pain in the bottoms of my feet. mainly the bottom of my heels. [more..]
  • NEUROPATHY ON LEFT SIDE - by ROBIN - (Mon, Mar 10 2008)
    I AM 45 YEARS OLD AND A COUPLE OF WEEKS AGO FELT PAIN IN MY LEFT CALF. I THOUGHT IT WAS JUST A PULLED MUSCLE BUT THE PAIN STARTED TO GET WORSE AND MOVED UP TO MY HIP. THE PAIN IS SO BAD I WOUND UP IN THE ER [more..]
  • 23 and neuropathy - by Terri - (Fri, Mar 07 2008)
    Hi, I’m 23 and I have been diagnosed with neuropathy about two months ago. The pain is unbeliveable. I can’t sleep, I can’t work, and I can’t do anything. I have no energy at all. [more..]
  • neuropathy sufferer but noone believes it - by LTH - (Mon, Mar 03 2008)
    I am 35 years old and was told by a neurologist 4 years ago that I had neuropathy but then I have been left to get on with it. I have tingling in my hands and feet at sporadic times during the day and wake up with my hands in spasm during the night and first thing in the morning. [more..]
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