|
This section is a place to share stories about Living with Neuropathy
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story.
In honor of National Cancer Survivors Day on June 1, 2008, we asked you to share your stories about surviving cancer. Read the inspiring stories we received or share your survival story and help others in the fight against cancer.
To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.
It comes with the territory.
by: Beto
on Thu, Mar 13 2008
In September of 1970 I returned to eastern TN from two years service in the US Navy’s Brown water fleet. The rockets, rpg’s, mines and assorted small arms fire were clear signals attesting to fact that our LST (tank landing ship) was not acceptable to our welcoming committee.
The insidious enemy, however, was to be found lurking in the lush vegetation. The thick tropical jungle was dangerous in many ways but it would not reach its full potential until it’s foliage met its nemesis, Agent Orange.
No, Agent Orange was not some espionage operative. rather, it was a defoliant spread in crop duster fashion, on the verdant landscape. True, it denuded the the trees and in so doing left less areas for cover for the Viet Cong.
In the process of killing Mosquito’s with napalm, the collateral damage began to rise round about in a mound. The enemy, friends, allies and even our own troops.
Those of us who plied the rivers, canals and interconnecting waterways, not only received the over spray, we were privileged to drink the stuff.
Needless to say, when Neurologists say the peripheral neuropathy that has plagued me for these 37+ years is idiopathic. I have to smile… through the pain.
At 58 yrs I can no longer work and the medicine that kept my pain under control is gone. Tomorrow, Lord willing I will face the VA and see what they have to say.
Wish me luck 
Comment on this
Comments
-
Fri, Mar 14 2008
I hope you get some answers at the VA clinic. I have known of others who were exposed to Agent Orange and it was difficult for them, as they were hav...Read
March 2008
- When will someone actually listen?? - by Kristi Reckenwald - (Mon, Mar 31 2008)
My name is Kristi and im 28 years old. Almost 1 1/2 years ago i was found passed out in the bathroom at my daughters school. I had been having the worst pain in my left side mainly in my arm and foot for about 3 weeks prior, i was to the point i wish i could have pulled it out of the socket.
[more..]
- 25 neuropathy taking charge over my life - by Tonya - (Tue, Mar 25 2008)
Hi Im Tonya and this is my story, I first began showing signs of Neuropathy at age 22 in 2005 My feet used to swell and my legs used to be sooo hot they could cook eggs.
[more..]
- Neuropathy 8 years later - by Robert - (Tue, Mar 25 2008)
My name is Robert and now at 29 yrs old, I am still at square one with treatment. I have been on neurotin and elivil with no success.
[more..]
- NEUROPATHY FROM ANTIBIOTICS - by Ward - (Mon, Mar 24 2008)
I developed my neuropathy after being on Fluoroquinolone antibiotics (Levaquin, Tequin) for several years. Started just in my feet & was diagnosed as “small fiber neuropathy”.
[more..]
- 8 years later and still no answer - by Robert - (Mon, Mar 24 2008)
My name is Robert and I was diagnosed with bilateral ulnar nerve neuropathy back in 2000 while I was on active duty. I spent most of my time recovering from surgery and theorpy.
[more..]
- pure agony - by suzanne - (Wed, Mar 19 2008)
not only i ended up with neuropathy from chemo meds but i was also unfortunate to end up with nerve damage from a tumor on the thoracic spine (with radiation followed by surgery).
[more..]
- It comes with the territory. - by Beto - (Thu, Mar 13 2008)
In September of 1970 I returned to eastern TN from two years service in the US Navy’s Brown water fleet. The rockets, rpg’s, mines and assorted small arms fire were clear signals attesting to fact that our LST (tank landing ship) was not acceptable to our welcoming committee.
[more..]
- Neuropathy? or what? - by Cindy - (Thu, Mar 13 2008)
Hi I’m 37, and I’ve been suffering for a long time. Last summer it got much worse. I got pain in the bottoms of my feet. mainly the bottom of my heels.
[more..]
- NEUROPATHY ON LEFT SIDE - by ROBIN - (Mon, Mar 10 2008)
I AM 45 YEARS OLD AND A COUPLE OF WEEKS AGO FELT PAIN IN MY LEFT CALF. I THOUGHT IT WAS JUST A PULLED MUSCLE BUT THE PAIN STARTED TO GET WORSE AND MOVED UP TO MY HIP. THE PAIN IS SO BAD I WOUND UP IN THE ER
[more..]
- 23 and neuropathy - by Terri - (Fri, Mar 07 2008)
Hi, I’m 23 and I have been diagnosed with neuropathy about two months ago.
The pain is unbeliveable. I can’t sleep, I can’t work, and I can’t do anything. I have no energy at all.
[more..]
- neuropathy sufferer but noone believes it - by LTH - (Mon, Mar 03 2008)
I am 35 years old and was told by a neurologist 4 years ago that I had neuropathy but then I have been left to get on with it. I have tingling in my hands and feet at sporadic times during the day and wake up with my hands in spasm during the night and first thing in the morning.
[more..]
|
