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Painful trigeminal neuropathy


by: Amie on Fri, Jan 11 2008

7 months ago I was diagnosed with trigeminal sensory neuropathy I have had many tests and the only one that revieled anything was a MRI that showed an enhancement of the nerve. I have seen 2 neurologist and neither has had any idea why this is happening.

The pain is excrutiating to the point were I have had to go to the emergency room. My insurance will not cover anything relating to this condition because they consider it pre existing. I am trying now to find another doctor that can help me manage the pain and is motivated to help me find out what is wrong with me.

I am 28 years old with 2 children under 4 that I stay at home with. My quality of life has deteriorated since this began and I really need some help. Does anyone know of any good doctors in California that are interested in tough cases??

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January 2008

  • Calf Pain, Neuropathy? - by Don - (Wed, Jan 23 2008)
    I am a 42 year old man who has been fighting leg pain in both my lower legs but not my feet. I have had every test, xray and MRI they can come up with. [more..]
  • sensory neuropathy - by RLG - (Mon, Jan 21 2008)
    I have been using neurontin and tegratol to treat my burning body,half of face and feet. then I developed cystitis and was put on antibiotics and emeron. [more..]
  • feet pain - by larry - (Mon, Jan 21 2008)
    i am a 52 year old male. never smoked, drank, or took any drugs. about 2 years ago i started getting pain in both feet. [more..]
  • neuropathy - by D.E. - (Tue, Jan 15 2008)
    Am I unusual? MNy feet feel like I am wearing hose when I wiggle my toes… [more..]
  • Painful trigeminal neuropathy - by Amie - (Fri, Jan 11 2008)
    7 months ago I was diagnosed with trigeminal sensory neuropathy I have had many tests and the only one that revieled anything was a MRI that showed an enhancement of the nerve. [more..]
  • Painful Feet. - by Peter - (Fri, Jan 11 2008)
    I was diagnosed with Neuropathy about 4 years ago. I have had numerous tests done. My feet, after having walked on them for a short distance become extremely painful, [more..]
  • The freezing/burning legs and bum - by elen - (Thu, Jan 10 2008)
    I’m not sure what exactly my problem is but I think I suffer from some kind of nerve damage. My symptoms are in the areas I sit or lie on and the freezing or the burning ( it can be either one or the other) can be very severe. [more..]
  • what is really wrong??? - by Carrie Fouts - (Wed, Jan 09 2008)
    In May of 2003 I was working for a child care center , we ranged in children ages 2 1/2 to 13years. We would often take the children on outings, field trips. One such occasion landed us at a indoor jungle gym play structure,while playing in the structure I recieved the injury of my life, [more..]
  • Per. Nueropathy. - by Mary v. - (Tue, Jan 08 2008)
    I am 82 yrs old and have had PN for about 4 yrs. I do not have diabetes No one in my family has this. I take Lyrica twice a day but I still have pain. [more..]
  • My story - by Vandra - (Wed, Jan 02 2008)
    Both my mother and myself have been diagnosed with peripheral neuropathy. Neither of us have diabetes [more..]
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