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Living with Neuropathy

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My adventure with neuropathy
by: Shannon on Mon, Aug 06 2007
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I was diagnosed with PN about 5+ years ago. I’m now 34 and It’s taken alot of medications to control it. I finally had to give up the notion that I would be a junkie if I used the medications that I’m taking. I can lead a mostly normal day now. At first I was in so much pain I really didn’t know what to do.

I was suffled around from Dr. to Dr. They still haven’t found the cause. More than likely it’s genetic and expensive testing is the only way to tell. I don’t have kids and don’t plan on having any so I’m resolved to just working on managing my pain.

The only advice I can give you all is, if you are in pain there are things you can do.

Keep you hope up and keep trying things. I thought it was a death sentance at first and it got worse when they told me I would have a normal life expectancy. I though ‘Oh great. I’ll live a long life in pain.’

But I changed the way I think and now address the pain head on. I control it, not the other way around. Hope this helps.
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August 2007

  • perineal axonal neuropathy - by CW - (Mon, Aug 27 2007)
    I just been seen and was told i have neuropathy Not a diabedtic.gone for all test.. now they tell me I may need surgery. [more..]
  • Not Sure what I have - by Faye - (Wed, Aug 08 2007)
    I have a doctor appt in two weeks to see if I have Neuropathy My left knee started hurting about 5 months ago and had gotten so bad I could hardly walk. It even hurt on the back side above the knee when I sit. I have trouble sleeping because of the pain. I have shooting pain all the way to the bottom of my foot and my ankle swells. [more..]
  • My adventure with neuropathy - by Shannon - (Mon, Aug 06 2007)
    I was diagnosed with PN about 5+ years ago. I’m now 34 and It’s taken alot of medications to control it. I finally had to give up the notion that I would be a junkie if I used the medications that I’m taking. I can lead a mostly normal day now. At first I was in so much pain I really didn’t know what to do. [more..]
  • NEUROPATHY - by LUPE - (Mon, Aug 06 2007)
    I WAS DIAGNOSISED WITH NEUROPATHY ABOUT A MONTH AGO, THEY ALSO SAID THAT B12 WAS THE CAUSE OF IT, SO I HAVE BEEN TAKING THE SHOTS FOR WEEKS NOW. I HAVE BEEN SUFFERING WITH PAIN FOR 7 YEARS AND THEY HAVE BEEN DOING ALL KINDS OF DIFFERENT TEST BUT I WAS ALWAYS TOLD THAT IT WAS MY SPINE THAT WAS THE PROBLEM SO NEEDLESS TO SAY I HAVE HAD ALL KINDS OF THERAPY OF ALL KINDS. [more..]
  • Young with neuropathy - by TS - (Mon, Aug 06 2007)
    I have idiopathic peripheral neuropathy. There is no explanation, and I have had ALL tests possible. Next month is one year of pain in my feet mostly, used to burn up to my knees, but it has gotten a little better with medication. The pain can be terrible, but the good thing is (at 31 yo) that idiopathic can get better. [more..]
  • A long term problem - by GUY - (Thu, Aug 02 2007)
    1975, I started custom insoles for my howling feet. in 1992, I quit insoles because my feet were numb and didn’t hurt. today, my feet hurt to my knees and my hands hurt in all fingers, hurt is a tingling burning sensation. at nite, I take vicodin to control the pain. [more..]
  • From Sprain To Amputation in 5 months - by Anne - (Thu, Aug 02 2007)
    My husband doesn’t have diabetes, but does have idiopathic neuropathy which he inherited from his mother. He had a bad sprain in January. No pain, but incredible swelling all the way up his leg. After 6 weeks our family doctor suggested he see an orthopedist. The new doctor never took an xray of his own… [more..]

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