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Living with Neuropathy

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Without hope?
by: renee on Wed, Jun 20 2007
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1 yr. ago Neuropathy attacked me with a vengence. It started with hands,feet,arms,my butt. My left hand curled and my right foot dragged when walking. Before I knew it, it “crawled” up my legs, lower half of my face and scalp. My neurologist put me on 3000mgs. of neuronton a day. Right away I shook, jerked when walking and jaw jerked when talking and could barely a get a word out. I cut it back to 2000mgs. a day. It has uncurled hand and don’t drag foot. But barely took the “edge off.” I take 100mgs. of Elavil 2 hrs. before bed. Only way to get some sleep. I take vicodin and Soma when need it which is every day.

All this occured after husband lost his job and insurance gone. We’ve had to pay for tests Dr. visits and labs. All this came out of what little retirement $ we had. I need an mri but no $.

In this past yr. I had 2 days of no pain and was so grateful! I buy vitamines/minerals from Canada. They are made for neurapathy. I don’t expect to be pain free. I just want it managable.

This has effected every area of my life. I’m 52yrs. old. I can’t work. It takes my whole being to just function. Clothes hurt me I hardly talk to folks about it. There is no way they can understand without being in my shoes. So why burden them? It’s a hidden disease. Over 20 million are suffering and I thought it was only me in this world,suffering. I would not want ANYONE to suffer so. In a heartbeat I would let the medical world study and test me. The pain is that severe and debilitating.
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June 2007

  • Recently knocked out of the lime life by neuropathy - by O.E. - (Tue, Jun 26 2007)
    A few month ago i was told i have neuropathy can’t work can’t sleep, can’t go for a walk. I don’t understand why . I worked all my life and have been very healthy. [more..]
  • Neuropathy/restless legs - by Dorothy - (Mon, Jun 25 2007)
    I was dianosed with diabetes about 5 years ago. I am not on any diabetes medication; and, so far, I am handling it with diet & exercise. I am also troubled with restless legs and by 5 pm every day, I take 5 Requip tablets (0.25 mg) which does give me some relief. [more..]
  • Without hope? - by renee - (Wed, Jun 20 2007)
    1 yr. ago Neuropathy attacked me with a vengence. It started with hands,feet,arms,my butt. My left hand curled and my right foot dragged when walking. Before I knew it, it “crawled” up my legs, lower half of my face and scalp. [more..]
  • NEUROPATHIES & RHEUMATISM - by SE - (Tue, Jun 12 2007)
    After having an adverse reaction to a tetanus vaccine, I developed neuropathies and Polymyalgia Rheumatica. My entire body is affected with inflammation in muscles and nerves. [more..]
  • Neuropathy Pain - by DL - (Mon, Jun 11 2007)
    Hi - It’s 2:26am and I cannot sleep due to continuous pain in my feet. Four years ago I was diagnosed with Breast Cancer [more..]
  • Theresa’s neuropathy - by T. L. - (Thu, Jun 07 2007)
    Two years ago, I started getting pains in my feet, hands etc, I was diagnosed with neuropathy I take ampytripiline and go to a great Chinese doctor twice a week for two hour sessions. [more..]
  • Burning, tingling, numbness, electric pain in hands, feet - by maria - (Thu, Jun 07 2007)
    Hi, since i was 11 years old i have had Burning , tingling , numbness, and electic pain in my Hands and feet. The pain is so unbearable i cant sleep at night, I also twitch all night , i cant express enough the pain i have gone through [more..]

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