Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My Story 
I have a very story family history. My grandmother, mother, uncle. The trait was very strong in my mother. She was covered all over. My grandmother and uncle was on the midsection and backs. I have few on neck check and back. One develop on head in less then a week. I go to the doctor next week to have it removed. This is my 4th one to be removed.
September 2009
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