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Living with Neurofibromatosis

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having NF
by: kiki on Thu, Aug 06 2009
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I am a 26year old female.I was diagnose at 12,a lump from my leg. from i was born its been a little hard building my self esteem. with people asking questions, kids teasing me at school.and watching other young females wearing what they wish. i am not going deaf or blind or have any disabilty. I have a healthy son with no signs. A wonderful boy friend who is so supportive and tslks about marriage. I hate that i was born like this-but grateful im not crippled or short off any limbs. life goes on i guess
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August 2009

  • Neurofibromatosis. - by Stephanie - (Tue, Aug 11 2009)
    Hello, my name is stephanie I, have a very interesting story to tell. . I, have neurofibromatosis NF1 diagnosed in 1986 at the age of 39. no one ever knew what was wrong with me until one day I, went with my then wife now best friend and son to Baylor College of Medicine in Houston , Dr Vincent ricardi gave me the complete report and diagnosis of this horrable and dreaded disease [more..]
  • having NF - by kiki - (Thu, Aug 06 2009)
    I am a 26year old female.I was diagnose at 12,a lump from my leg. from i was born its been a little hard building my self esteem. [more..]
  • Bad Experience - by xiaoxiongmao - (Mon, Aug 03 2009)
    I am 46, Singaporean. I work with an MNC company for 19 years and just retrenched last year at 2008. (Closed down of Singapore Factory) After that, I work as contract or Part Time Admin Assistant. Some employer asked me about my NF, then they decided not to take me. [more..]

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