Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download linda’s story 
i also have nf…. iw as married for a few years … my second child had a speech problem…. my family doctor sent us to a specialist… i was informed that we both had nf… it was a shock…. nf came from my dad’s family… his mother…no one even know that it was there…. i am 58 now … my son with alot of hard work ….talked my the time he was in grade 5….. graduated….. i have a few health problems ….. lots of tumors… have some removed when they bother me…. people some times ask whats wrong with me…. hope some one out there knows this… i suf fer from chronic diaheria… read some where that it goes with nf …. is this true a nd if so is there any drug that will help..
July 2009
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