Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download my neurofibromatosis 
I always had birthmarks as a child. I did not start getting the bumps on my skin until I was 30- that was in 1995.I remeber because it was about the time I got divorced.Could be that the stress made it appear-I dont know. It never bothered me at all but I had a large mole( it was a neurofibroma) removed I think it was in 2003.that was when I was diagnosed with neurofibromatosis Some people look at me and ask about it or ask me whats wrong with my skin,It never really bothers me,especially now that I am older. I tell them it aint contagious.Sometimes it scares the guys off.And I really dont have any other symptoms.It does seem as I get older that I get more bumps.I am 43 now.I have a 24 year old and she does not show any symptoms at all.
May 2009
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