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Living with Neurofibromatosis

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neurofibromatosis
by: HG on Thu, Apr 30 2009
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when i was little i always had bumps on my arms… my mom just thought it was nothing but one day my mom took me to the doctor! I had type 1 NF. my life turned upside down… ever since then ive been getting radiation and chemotherapy treatments!


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  1. Thu, May 28 2009
    I am now 44, but I did not start getting the bumps until I was 30. The doctor said it can be passed down to the kids and they recomend those with NF n...Read
  2. Fri, May 08 2009
    i have a son whom was diagnosed when he was 2 yrs old. he is now 12 and just starting to get the bumps on his skin. the doctor said he would start t...Read

April 2009

  • neurofibromatosis - by HG - (Thu, Apr 30 2009)
    when i was little i always had bumps on my arms… my mom just thought it was nothing but one day my mom took me to the doctor! I had type 1 NF. [more..]

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