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Living with Neurofibromatosis

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my family story
by: ssb on Fri, Jan 16 2009
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how hard must it be to hear that you will not get old before your conditions kills you, my uncle was a child when he found about nf and has been great stoke threw the pickin on and teasin as he gets tumors by his nose. now a grown man been threw so may operations and chemo and radio to be told a month before his girlfruend is expection an baby he has got 2-3 years how much i did not wanna hear the words they how know find a tumor they cannot opertate on at age of 32. omg its hard but he battlin on,, so all you youngens live ur life cuz we thought things were gettin better but they dont
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January 2009

  • nf - by kerry - (Tue, Jan 27 2009)
    i have nf since i was little it can be very uncomfortable to live with as well as people bulling you about it. [more..]
  • living with nf - by desiree' - (Fri, Jan 23 2009)
    i have been living wth nf for abput five years. [more..]
  • my family story - by ssb - (Fri, Jan 16 2009)
    how hard must it be to hear that you will not get old before your conditions kills you, my uncle was a child when he found about nf and has been great stoke threw the pickin on and teasin as he gets tumors by his nose. [more..]

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