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Living with Neurofibromatosis

This section is a place to share stories about Living with Neurofibromatosis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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January 2009

  • nf - by kerry - (Tue, Jan 27 2009)
    i have nf since i was little it can be very uncomfortable to live with as well as people bulling you about it. [more..]
  • living with nf - by desiree' - (Fri, Jan 23 2009)
    i have been living wth nf for abput five years. [more..]
  • my family story - by ssb - (Fri, Jan 16 2009)
    how hard must it be to hear that you will not get old before your conditions kills you, my uncle was a child when he found about nf and has been great stoke threw the pickin on and teasin as he gets tumors by his nose. [more..]

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