Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download having kids? 
I am a 20 year old female who has had NF since I was born. When I was younger, not that I’m old, I only had a few of the spots, as I got older I got more and more. When I was about 16 or 17 I started getting the bumps but they don’t poke out they are, it seems like under my skin but you can still see them. My mom also has this but after she had kids her bumps, Im not sure of the right wording here, but they came out I guess you could say. I want to have kids some day but I am afraid that my husband will not want me anymore. I’m already very self conscious about it as it is. sometimes I hear my dad talk about my mom and it makes me feel very sad like nobody would ever want me and why would I want to do that to somebody. I know this is very selfish but this has bothered me for a long time.
December 2008
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