Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download NFII AND ME 
I was diagnosed when I was 14. Since then it has been a downhill spiral toward a wheelchair. Up untill the age of 25 I managed to lead a pretty normal life. Yeah, I had surgeries here n there but I always came out and went back to my life. Untill now… A few months ago a tumor growing in my neck had to be removed to avoid paralysis. I’ve slowly began to regain my strength but the feeling in my legs has yet to return. The doctors all say it might or might not come back so now I’m living in a nightmare wishing I could just wake up. To make matters worse.. The nerves on the left side of my face have been effected so now my award winning smile looks weird. It’s hard at this time cause for 25 years I was what we call normal. I now have to go to physical therapy I had to learn how to walk again, and have to get use to the idea that I may not ever wear my heels again.
November 2008
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