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Living with Neurofibromatosis

This section is a place to share stories about Living with Neurofibromatosis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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November 2008

  • Jared’s life - by CRL - (Thu, Nov 20 2008)
    Hello everyone. My Grandson Jared is now five years old. It has been a year since he was diagnosed with NF type 1. [more..]
  • living with nf1 - by shellbell - (Tue, Nov 11 2008)
    I have nf1, my mother has it, and my youngest daughter has it, right now she is 13 with only the cafe’ au lait spots,(which she hates, but I told her some guy is going to fall madly in love with her, and her spots, period) and she is gorgeous [more..]
  • NFII AND ME - by MARS - (Mon, Nov 10 2008)
    I was diagnosed when I was 14. Since then it has been a downhill spiral toward a wheelchair. Up untill the age of 25 I managed to lead a pretty normal life. [more..]

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