Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download bone scan 
I lost my left leg in 1993 due to NF I had a bone scan a few days ago on my right leg to see if one is growing there I am in a lot of pain I won’t know the results for a few more days I don’t want to loose my other leg so as you can guess I am very scared I don’t know if I can handle it
August 2008
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