Living with Neurofibromatosis

July 2008

• my lucky charms “NF1″ - by Charm - (Thu, Jul 31 2008)
  i am 30 yrs old and i have NF1. This was started growing when i started my period age 12. And now I am still hoping that i will be cure. [more..]
• neurofibromatosis stress and growth - by Jennifer - (Thu, Jul 24 2008)
  i really feel bad because there is no cure totally for this disease but i believe i can be cure because i am a christian and i believe in miracles [more..]
• NF1 and Me - by Lori - (Tue, Jul 22 2008)
  Sometime’s I get so mad I curse NF I was diagnosed in the early 90’s at first I thought ok how bad can it be but boy after a few years it has gotten bad [more..]
• NF 1 and pseudoarthosis (bowed Tibia) - by KP - (Mon, Jul 21 2008)
  I was born with a bowed left tibia that my parents noticed at 3 months of age. By 8 months of age my leg was placed in a long plaster cast to protect it. It broke in a cast about 2 weeks after. I have had many operatins since infancy to strighten and mend it.. with this condition it never mends. [more..]
• NF - by Eva - (Thu, Jul 17 2008)
  I first found out I had NF when I was 16 I had a bowed left leg all my life [more..]
• NF1 - by Judy - (Fri, Jul 11 2008)
  My 5 year old grandson was recently diagnosed with NF1. He has many cafe au lait spots on his tummy & back and also a small tumor like swelling on his index finger which makes it appear distorted. [more..]
• Neurofibromatosis - by SA - (Fri, Jul 11 2008)
  HI I’M 26 YEARS OLD AND WAS DIAGNOSED WITH NEUROFIBROMATOSIS IN 2001. I WAS TOLD I HAD A TUMOR ON MY NECK. AFTER THE SURGERY THE DOCTOR TOLD ME HE WAS ONLY ABLE TO TAKE 1 TUMOR OFF. [more..]