Living with Neurofibromatosis

Hello
My name is Robin Williams and I live in Vonore, TN. I have a disease called Neurofibromatosis and in 1995 I was diagnosis with cancer. Neurofibromatosis causes tumors on the nerves and most are benign but for unknown reason I had one on my leg that was cancer. It was as big a a softball and it was removed at the VA hospital in Johnson City, TN. I had 30 radiation treatments and was told I had a chance to get cancer in my lungs or brain.

Its was 13 years on January 29,2008 and I’m still cancer free. During the time I had cancer I had two kids and a husband who lived with my in-law’s. My mother-in-law help take care of my kids while I was gone for over 6 weeks to have treatments. My youngest son Joey has NF (Neurofibromatosis) and he has learning disability and tumors all over his body. We pray every day that he will be able to go through life with no more problems and no cancer. He is now 19 and going to graduate from high school in June and last May he got his Eagle in boy scouts. So he does have some learning disability but he plans to go to college on line for computer gaming. My other son is 21 and married. NF is genetic but I got it from a mutation gene then gave it to Joey. Joey will carried it to his kids if he choses to marry and have kids. We suggest to him to have genetic counseling when he decides to marry. Well thats about it. If you have any questions you are welcome to ask.
Robin